Access to Research involving Children an Intensive Workshop
Monday, 10 February 2014 from 12:30 to 16:00 (GMT)
San Francisco, California
London, United Kingdom
"Children and young people are being denied the right to benefit from (clinical) research.
There is a mistaken and outdated notion that they need to be protected from (clinical) research, but the reality is that children are being harmed by not being included.
The importance of children taking part in clinical research cannot be underestimated.
Children are not small adults; the medicines and treatments children receive need to be trialled and shown to be effective in them, and not simply assumed to be from the results of research in adults.
Some colleagues at UCL will have projects where children could be involved but don’t have the expertise to engage these children. Indeed these projects may be outside of biomedicine. At this forum you will have chance to get free advice from an experienced researcher and his senior team members free to you as a UCL researcher.
12.30 - 12.40 - Introduction to session by professor Graham Hart (Dean of Faculty of Population Health sciences)
12:40 - 13.05 - Research involving pre-adolescent children- why/when/how key concepts
13:05 -13.30 - Bench to bedside project an example- Dr Lewis & Griffin and Dr Alastair Sutcliffe
13:30 - 13.50 - Unique conditions that affect children the Role of Contact-a family
13:50 - 14.10 - break and coffee
14:10 - 1500 - sub division for sand pit activities (each proposal to have a child research family orientated advisor/expert at their table to give focussed advice from Dr Sutcliffe¹s team)
15:00 - 16.00 - Legal aspects regarding consent- Sophie Pownall LlB Trust Legal Officer GOSH
When & Where
Kath Peacock - GAP Unit Administrator
Event being arranged by the General & Adolescent Paediatric Unit, based within the Institue of Child Health at UCL.