What can Cambridge contribute to global efforts in rare disease research?
Who’s leading the way in collaborative, innovative research, treatment and care for those with rare diseases?
How can we put patients and their families at the centre of all discussions?
Hear from those leading the way in rare diseases at the Cambridge International Rare Disease Summit 2016.
Where: Robinson College, University of Cambridge
When: Tuesday 25 October 2016
Costs: tiered pricing, with discount tickets for patient support groups, start-ups and students
Following the sell-out success of its first summit in 2015, the Cambridge Rare Disease Network is once again bringing international leaders and local experts together in Cambridge to bridge the gap between research, industry, business and patient groups.
Anchored by powerful patient voices, this one-day conference will explore:
- international rare disease innovations
- new rare disease initiatives on the horizon
- innovations in health
- engaging and collaborating with pharma.
A wide delegate base, representing academia, healthcare, industry, business, patients support groups and more will allow delegates to explore potential collaborations and gain a broader understanding of opportunities in rare diseases.
Confirmed speakers include:
- Dr Yann Le Cam, Chief Executive Officer of Eurordis
- Ben Howlett MP, Chair of All Party Parliamentary Group (APPG) on rare, genetic and un-diagnosed conditions
- Prof Patrick Maxwell, Regius Professor of Physic and Head of the School of Clinical Medicine of the University of Cambridge
- Dr Olivier Menzel, President and Founder of Black Swan Foundation Switzerland)
- Alastair Kent, OBE, Director of Genetic Alliance UK and Chair of Rare Disease UK
- Dr Paul Tunnah, CEO and Founder of Pharmaphorum Media
- Karsten Barton, Head of Department, Frambu Centre for Rare Disorders (Norway)
- Dr Alex McKenzie - Care for Rare and Vice-Dean Research for the Department of Paediatrics at CHEO (Canada)
- Hiran Prag, Engagement Manager at Cambridge Consultancy Network (lead on need and feasibility study of rare disease nurse service for CRDN)
- Dr Lucy Mackay, Students4RareDisease
- Dr Lucy Raymond, Consultant Clinical Geneticist at Addenbrooke's
- Daniel Lewi, Cure and Action for Tay-Sachs Foundation
- Dr Birgitte Volck, Head of Research and Development, Rare Diseases, GlaxoSmithKline
- Dr Alex Mackenzie Care for Rare (Canada)
- Dr David Pardoe, Head of Growth Projects, MRC Technology
- Karen Harrison, Endocrine Awareness Project Manager, ALD Life
- Emily Kramer-Kolingoff - Co-Founder and Executive Board Member of Emily's Entourage
We’re also thrilled to host examples of beautiful portrait photos of children with rare and undiagnosed conditions loaned to us by 'Same But Different' http://www.samebutdifferentcic.org.uk/rare-project/
Following the formal proceedings we will continue the conversation over drinks at Robinson College. We then invite you to attend our gala dinner in the Crausaz Wordsworth Building to close the evening.
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Cambridge Rare Disease Network
CRDN is a charity based in Cambridge, UK. Our mission is to bring together the active stakeholders in rare disease research and development, to foster dialogue and increase awareness.
As part of our work, we organise events to bring together patient groups, activists, entrepreneurs, academics, healthcare professionals, pharma and policy makers. We do this through a series of events focused on different aspects of rare diseases.