Regional Supporters Meeting - Belfast

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Thank you for registering with the Cystic Fibrosis Trust. You will receive further information and full joining instructions closer to the event. If you have any queries, please contact Paul Taylor (020 8290 5082)

Regional Supporters Meeting - Belfast

By Cystic Fibrosis Trust Conferences

Date and time

Wed, 25 Mar 2015 19:00 - 21:30 GMT

Location

NICVA

61 Duncairn Gardens Belfast BT15 2GB United Kingdom

Description

I am delighted to invite you to attend the annual CF Supporters Conference, which was postponed last November and is now taking place on Wednesday 25 March 2015 at the Northern Ireland Council for Voluntary Action (NICVA).

The meeting starts at 7pm and is open to parents and carers of those with cystic fibrosis and anyone with an interest in the condition (unfortunately, in accordance with the Trust's policy on cross-infection, we cannot allow people with cystic fibrosis to attend).

Ed Owen, the Chief Executive of the Cystic Fibrosis Trust, will speak about the Trust's ambitious plans; Professor Stuart Elborn CBE and the teams from the two CF units here will tell us of the latest developments in research and will bring us up to date on developments and treatments here in Northern Ireland. They will also provide the usual panel to try to answer your questions.

We welcome your views and suggestions on the work of the Trust and the meeting will also offer an opportunity to feedback to Ed and myself directly to ensure that we're meeting your needs.

Linda Alexander,
Community Development & Fundraising Manager
Cystic Fibrosis Trust

Agenda

07.00 pm Registration, tea and coffee

07.15 pm Welcome and introduction
Tracy Flannigan, Chair of the Northern Ireland Council

07.30 pm The Cystic Fibrosis Trust in Northern Ireland
Ed Owen, Chief Executive, Cystic Fibrosis Trust

07.45 pm Update on Research and Treatment by the CF consultants and teams from two CF Units

08.30 pm Panel Q&As
CF Consultants, Ed Owen, Linda Alexander

09.00 pm How can you get involved?
Linda Alexander
Community Development & Fundraising Manager- Northern Ireland, Cystic Fibrosis Trust

9.20 pm Closing comments
Tracy Flannigan, Chair of the Northern Ireland Council
Ed Owen, Chief Executive, Cystic Fibrosis Trust

9.30 pm Close

Organised by

Cystic Fibrosis Trust Conferences is the events arm of the Cystic Fibrosis Trust - the UK's only national charity dedicated to all aspects of cystic fibrosis (CF).

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