Actions Panel
Regional Supporters Meeting - Belfast
Date and time
Location
NICVA
61 Duncairn Gardens Belfast BT15 2GB United KingdomDescription
I am delighted to invite you to attend the annual CF Supporters Conference, which was postponed last November and is now taking place on Wednesday 25 March 2015 at the Northern Ireland Council for Voluntary Action (NICVA).
The meeting starts at 7pm and is open to parents and carers of those with cystic fibrosis and anyone with an interest in the condition (unfortunately, in accordance with the Trust's policy on cross-infection, we cannot allow people with cystic fibrosis to attend).
Ed Owen, the Chief Executive of the Cystic Fibrosis Trust, will speak about the Trust's ambitious plans; Professor Stuart Elborn CBE and the teams from the two CF units here will tell us of the latest developments in research and will bring us up to date on developments and treatments here in Northern Ireland. They will also provide the usual panel to try to answer your questions.
We welcome your views and suggestions on the work of the Trust and the meeting will also offer an opportunity to feedback to Ed and myself directly to ensure that we're meeting your needs.
Linda Alexander,
Community Development & Fundraising Manager
Cystic Fibrosis Trust
Agenda
07.00 pm Registration, tea and coffee
07.15 pm Welcome and introduction
Tracy Flannigan, Chair of the Northern Ireland Council
07.30 pm The Cystic Fibrosis Trust in Northern Ireland
Ed Owen, Chief Executive, Cystic Fibrosis Trust
07.45 pm Update on Research and Treatment by the CF consultants and teams from two CF Units
08.30 pm Panel Q&As
CF Consultants, Ed Owen, Linda Alexander
09.00 pm How can you get involved?
Linda Alexander
Community Development & Fundraising Manager- Northern Ireland, Cystic Fibrosis Trust
9.20 pm Closing comments
Tracy Flannigan, Chair of the Northern Ireland Council
Ed Owen, Chief Executive, Cystic Fibrosis Trust
9.30 pm Close
Organised by
Cystic Fibrosis Trust Conferences is the events arm of the Cystic Fibrosis Trust - the UK's only national charity dedicated to all aspects of cystic fibrosis (CF).