Public Involvement Workshop 4: Participant Documentation & Recruitment

Public Involvement Workshop 4: Participant Documentation & Recruitment

This session will cover the importance of involving the public in the creation of public facing documents and recruiting to studies.

By PERC & ICTU

Date and time

Tue, 17 Nov 2020 02:00 - 04:30 PST

Location

Online

About this event

Participant Information Documents must be accessible to the audience to which research is being targeted. Patients and the public can provide valuable feedback to ensure documents are easy to read and contain the relevant information for people to make an informed decision about participation in research. Involving patients and the public in planning recruitment can provide valuable insights about how and where to recruit participants. We will cover how to identify the most appropriate people to involve in these activities and share examples. This session is aimed at those who have completed “Public Involvement-The Basics” and ideally “Public Involvement Early in the Research Cycle”.

*All sessions are co-delivered with public contributors. *

Please Note

Please note that these training sessions have been designed as a series and we recommend that people attend as many as possible. Places will be allocated on a first-come-first-served basis, but priority will be given to researchers and members of the public affiliated to the NIHR Imperial Biomedical Research Centre (BRC), Patient Experience Research Centre (PERC) or Imperial Clinical Trials Unit (ICTU). If you are a member of the public or a researcher who is not affiliated with Imperial College, you may also be able to attend if there are spaces available.

As sessions work best with a mix of researchers and members of the public, we allocate places to each category of attendee. Therefore, you may be informed after registration that the places for researchers or members of the public are full which will mean you will need to register for the next available session.

Failure to attend

If you are an Imperial College or Trust employee, your department will be charged if you fail to attend this session and you do not provide 48 hours’ notice of non-attendance. Upon registration you will be asked to provide your line manager's email address indicating that you have received approval to attend this session and that the charge for non-attendance is acknowledged.

If you are a member of the public and you consent to Imperial College contacting you in future about public involvement and engagement opportunities, please click here to read our Privacy Notice.

Please also see read our Events Privacy Notice and our Event Policy/Code of Conduct here to which you will be required to adhere.

Use of Eventbrite for Registration

Please note that Eventbrite is a third-party Cloud service, and does not provide the level of information security and data protection for your data you would normally expect from an Imperial College information service. We expect you to provide your e.g. full name and email address for this event, and you will have to register with the Eventbrite service as a personal consumer. Eventbrite will ask you to create an account with them using at least your first name, last name and your email address. Their terms and conditions state (in summary) that by doing so “ you acknowledge and agree that you grant them full right and licence to use this information for the purpose of operating their Services (including Eventbrite’s promotional and marketing services).” Please also note that Eventbrite is a company registered in the United States, and the data you provide to them is most likely to be kept in the servers outside the European Union. As a result, if you prefer not to use the services provided by Eventbrite to register for this event, as an alternative please contact us on publicinvolvement@imperial.ac.uk directly providing details of your role and organisation required for registration and we will process your registration.

Organised by

Patient Experience Research Centre (PERC), Imperial College London & Imperial Clinical Trials Unit (ICTU),  

The Patient Experience Research Centre (PERC) is a multidisciplinary group of clinicians, public health specialists and social scientists combining strengths in quantitative and qualitative research methods. We aim to promote active communication between patients, researchers and clinical staff to address real problems, and through this improve the quality of healthcare and the impact of translational research.PERC was set up in 2011 with start-up funding from the NIHR Imperial Biomedical Research Centre (BRC) and project funds from the Imperial College Healthcare Charity. 

http://www.imperial.ac.uk/patient-experience-research-centre/about-us/

Imperial Clinical Trials Unit  (ICTU)  is a UKCRC registered Clinical Trials Unit recognised for its experience and expertise in the development and delivery of clinical trials and associated high quality clinical research projects across a range of therapeutic areas. The unit leads primarily on the design, conduct and analysis of national and international multi-centre trials and the staff, with specialist disease and methodological knowledge, have input at all stages of the trial lifecycle; thus ensuring all activities are conducted according to the principles of ICH GCP and in compliance with the appropriate regulatory and ethical requirements. 

ICTU sits within Imperial College London as a department within the School of Public Health in the Faculty of Medicine and brings together academic, clinical and trial management expertise from across the Imperial College Academic Health Science Centre. ICTU also collaborates with members of the designated Academic Health Science Network for North West London - Imperial College Healthcare Partners, other national key clinical and scientific opinion leaders, other CTUs and with industry.

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