Since 2008 families have been getting together annually in the UK to share experiences with one another and to build deeper relationships that started in our online group. It has always been a place where we feel fully accepted, we don't feel feel like an outsider and where we feel support, comfort and encouragement. We've even had a research specialist come and join us at one of our family weekends.

In July 2021 we are planning the biggest conference to date. We have specialists and professionals coming from all over the UK and even the US. They specialise in different aspects of 1p36 deletion syndrome. The full itinerary will be released closer to the event.

We will be having a family party, mum and dad's nights out, and time for the siblings to get together.

This event is for families, caregivers, support staff, and of course all of our amazing 1p36 Deletion Syndrome children and adults.

Once you have booked your conference tickets, please use this LINK to the DoubleTree Hilton group booking page to reserve your hotel room. The 1p36 Family Trust has secured 15% off the best rate available, there are Queen Rooms, King Rooms, Queen Family Rooms, King Family Rooms and Two Queen Rooms to choose from.