1st UK Kennedy's Disease Day
£0 – £75
1st UK Kennedy's Disease Day

Event Information

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Date and Time

Location

Location

Radisson Blu Hotel, East Midlands Airport

Herald Way Pegasus Business Park

East Midlands Airport

DERBY

DE74 2TZ

United Kingdom

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Friends Who Are Going
Event description

Description

PROGRAMME

09:30 – 10:15

Registration and Coffee

10:15 – 10:30

Welcome and Introduction

Professor Mike Hanna, Director, UCL Institute of Neurology

CLINICAL UPDATE - Kennedy’s disease, what it does, how to manage it

10:30 – 11:00

Introduction to Kennedy’s disease

Dr Gianni Sorarù, University of Padova

11:00 – 11:30

Genetics, and options for carriers

Dr Elisabeth Rosser, Consultant Clinical Geneticist, Great

Ormond Street Hospital

11:30 – 12:00

Responding to patient and carers’ concerns

Jan Clarke, Nurse Consultant, National Hospital MND Care

Centre

GETTING INVOLVED

12:00 – 12:10

Katy Styles – The MND Association

12:10 – 12:20

Kate Hopps - Kennedy’s Disease UK

12:20 – 13:30 LUNCH

RESEARCH UPDATE - What goes wrong in KD? How to

understand it and how to change it

13:30 – 13:50

Research overview

Professor Linda Greensmith, UCL

13:50 – 14:10

Insights from mouse models

Dr Bilal Malik, UCL

14:10 – 14:30

Developing human models

Dr Helen Devine, Clinical Fellow

14:30 – 14:45 TEA BREAK

CLINICAL TRIALS - Which molecules to trial and how

14:45 – 15:15

Towards more effective clinical trials

Dr Pietro Fratta, Consultant Neurologist, Kennedy’s Disease

Clinic, NHNN

15:15 – 15:45

An update on clinical trials

Dr Carlo Rinaldi, Clinical Fellow, Oxford University

15:45 16:00

Closing Remarks

Professor Mike Hanna, Director, UCL Institute of Neurology





Please note that this event is free to patients; carers-family (maximum of two), genetic carriers and students; if you require more than two carers-family tickets, could you please email Debbie Hadley on d.hadley@ucl.ac.uk in the first instance.

For healthcare professionals/additional carers-family there is a charge of £75.00.

For further information, please contact Debbie Hadley on d.hadley@ucl.ac.uk


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Date and Time

Location

Radisson Blu Hotel, East Midlands Airport

Herald Way Pegasus Business Park

East Midlands Airport

DERBY

DE74 2TZ

United Kingdom

View Map

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