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3rd World Conference on CDG for Families & Professionals - Pre-Registration...
Sat, 15 Jul 2017, 08:30 – Sun, 16 Jul 2017, 17:00 CEST
The 3rd World Conference on CDG - “United shaping the future for CDG” will provide a patient-tailored program which will highlight important information in the clinical and research area, as we progress to our goal of better care and improvement of the quality of life of people living with CDG and related metabolic rare diseases.
Conference Program and Detailed Information at: http://www.apcdg.com/events.html
Themes under discussion:
CDG biochemistry,genetics, history,clinical presentation and diagnosis
Gastrointestinal and neurological involvement in CDG
Therapeutic approaches for CDG
Physical, occupational and educational approaches and resources
Psychological assessment and Patient Reported outcome measures for CDG