A diagnosis of aspergillosis can make you feel scared and isolated. You probably have many questions and not enough time with your consultant to have them all answered. As time goes on, you might find it comforting to talk to other patients who ‘get it’ rather than just relying on partners, friends and family.
Peer support is invaluable when you are diagnosed with a rare disease like aspergillosis. Our twice-weekly support meetings help those with aspergillosis realise they are not alone and provide an understanding environment to express feelings and concerns. Many patients who attend our support groups have been living with the disease for a long time, and they often share their experiences and personal tips for living with aspergillosis.
Meetings are organised and moderated by members of the NHS National Aspergillosis Centre CARES team, more information about the centre can be found below.
https://mft.nhs.uk/wythenshawe/services/respiratory-and-allergy/national-aspergillosis-centre/
