Free

BPA 20th Anniversary Festival 2019

Event Information

Share this event

Date and Time

Location

Location

Science and Industry Museum

Liverpool Road

Manchester

M3 4FP

United Kingdom

View Map

Event description
We’re excited to invite you to our 20th Anniversary Festival, celebrating 20 years of The British Porphyria Association

About this Event

Join us at the fantastic Science and Industry Museum in Manchester for the first ever porphyria festival designed especially for you!

With three main stages hosting a variety of sessions and an exceptional line-up of speakers, you can design your personal agenda for the day! Whether that's understanding strategies to help you gain control of your condition, listening to a wealth of personal stories and experiences or focusing on connecting with others, our 20th anniversary event is designed with you at the heart.

We’ve got three main stages to choose from:

UNDERSTAND

This stage will focus on the science of porphyria, management of symptoms and latest updates in the field of research. Suitable for patients who want a deeper understanding of their porphyria, or medical professionals.

CONNECT

This stage is patient centred and will focus on patients and their personal stories, interviews and interactive discussions. Suitable for all, this stage will help you to realise that you're not alone and aims to create vital connections with others.

TAKE CONTROL

This stage will focus on mental health and well-being, as well as ways to help you or your family take control and get the best out of life. Whether that's finding new activities, looking at alternative therapies or learning how to relax, this is for you.

As always, there’ll be plenty of opportunities to connect with other people with porphyria. We’ve also got a RELAX zone and a CHILDCARE room, so that you can get involved without being distracted.

Filming/photography will take place throughout the day. This is so that we can share presentations with those unable to attend and so that we can continue to improve education and awareness of the porphyrias, even after the event. We'll also have a video booth so that you can share your own stories and experiences with others.

Share with friends

Date and Time

Location

Science and Industry Museum

Liverpool Road

Manchester

M3 4FP

United Kingdom

View Map

Save This Event

Event Saved