Free

Communications Workshop 4 Have your say: Make the Rare Diseases Plan Work!

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Mulberry Suite,

Corrs Corner Hotel

315 Ballyclare Rd

Newtownabbey

BT36 4TQ

United Kingdom

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As part of the Rare Disease Plan we are working with the Department of Health and the HSC bodies to carry out a Communications and Information Review; and to make and implement recommendations for improvements to current systems.

This is one of a series of interactive Workshops, facilitated by Grace Henry, designed to find out what information you need, to help you tackle the challenges of a rare disease- whether you are a person living with a rare disease, a carer, a health professional, or a policy maker or service manager.

This is a chance to have your say- and shape how you will be included and involved in planning, decision making, and evaluating services, as well the information that is available, and how you can get it.

Outline Agenda:

  • What are Rare Diseases? Dr.Fiona J. Stewart MBE FRCP FRCPCH, Consultant in Genetic Medicine
  • The Rare Disease Plan and the HSC Ryan Wilson, Secondary Care Directorate, DoH
  • What do you need? Questionnaire and Facilitated Discussion Groups

Other Workshops:

  • 15 March 12.00 to 14.00 Seminar Room, Gransha Park House, 15 Gransha Park, Londonderry BT47 6FN
  • 16 March 15.00 to 17.00 Conference Room, Portadown Health and Care Centre, Tavanagh Avenue, Portadown BT62 3 BU
  • 22 March 16.00 to 19.00 Larkin Room. Post Graduate Medical Centre, Belfast City Hospital, Lisburn Road, Belfast BT9 7AB
  • 4 April 15.00 to 17.00 Boardroom, South West Acute Hospital, 124 Irvinestown Rd, Enniskillen BT74 6DN

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Date and Time

Location

Mulberry Suite,

Corrs Corner Hotel

315 Ballyclare Rd

Newtownabbey

BT36 4TQ

United Kingdom

View Map

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