Please join us on the 25th October 2018 for our online event to mark the 7th annual World Spina Bifida and Hydrocephalus Day #WSBHD18. Our webinar will begin at 9.00 UTC, and will be repeated at 6.00 UTC. You will also be able to catch up using the link that will be made available on our Facebook page (https://www.facebook.com/EUROlinkCAT/) and YouTube channel (https://www.youtube.com/channel/UCOiuckBghXuISwErBGqF5eQ).

PROGRAM

9.00 – 9.05 UTC WELCOME Dr Julie McCullough, Ulster University

9.05 – 9.20Professor Marlene Sinclair, Ulster University

Overview of the ConnectEpeople Project

9.20 – 9.40 Mr Lieven Bauwens, Secretary General, International Federation for Spina Bifida and Hydrocephalus

TBC

9.40 – 9.50 Mr Aidan Daly, Northern Ireland

A Parents Personal Story

9.50 - 10.05 Mrs Marie McGonnell, Health Adviser, SHINE

Living with Spina Bifida and Hydrocephalus

10.05 – 10.15 Mrs Clare Heaney, Northern Ireland

Amelie’s Journey

10.15 – 10.30 TBC

10.30 – 10.40 Mrs Zuzana Valette, Slovakia

A Parents Voice

10.40 – 11.10 Carmen Clemente, International Federation for Spina Bifida and Hydrocephalus

WSBHD18 Spina Bifida and Hydrocephalus throughout the Lifespan

11.10 – 11.20 Ms Anna Verster, Senior Adviser on Food Fortification, International Federation for Spina Bifida and Hydrocephalus

Folic acid and flour fortification

11.20 – 11.25 Facebook group ‘Redefining Spina Bifida’

WSBHD2018 video

11.25 – 11.30 Professor Marlene Sinclair

Closing remarks