Researchers rely on acquiring external data to validate, benchmark and supplement research findings.
Funders require researchers to make their datasets accessible for further reuse.
The goal of this workshop is to bring to the fore existing challenges with genomic data access and reuse. We will introduce a number of tools and resources to simplify #dataaccess and #datasharing.
1) Discuss current challenges in data sharing, focusing especially on researchers studying human genomic datasets.
2) Present a number of tools and resources for finding, accessing and sharing genomic data:
- EGA (European Genome Phenome Archive)
- Nature Scientific Data
3) Discuss the best practices for using data to power hypothesis testing and maximising research impact.
This workshop is NOT about:
- Data interpretation
- Data analysis
- Tools for data analysis and interpretation
- Genomic data providers
- Users of massive genomic datasets
- Data scientists
- Data curators
Charlotte Whicher - Product Manager at Repositive. Charlotte comes from an academic background, with experience in genomic data research and a PhD in Infection and Immunity from UCL. She understands the need for more data and the difficulties faced by researchers in finding and accessing that data.
Repositive is a Cambridge-based startup building a platform for facilitating access to and reuse of genomic data. The platform includes features for discovery of available data, making your data visible to the research community, managing your data sources and initiating data collaborations. The platform also integrates methods for secure data sharing and a patented mechanism for secure privacy-preserving data access.
Repositive is a spin-out of the charity DNAdigest which was started by Fiona Nielsen in 2013 to educate, facilitate, and engage on issues regarding access to genomic data for research. DNAdigest is a non-profit organisation founded in Cambridge, UK. It is a community of individuals from diverse backgrounds who all want to see data used to its full potential for the benefit of patients. DNAdigest organises events, issues a newsletter, conducts interviews and runs a blog.
Both organisations are part of Global Alliance for Genomics and Health.
Read more about Repositive and DNAdigest in PLoS Biology.
- Please bring along your laptop.
- Tea/coffee will be provided
Do you have questions about Finding and Accessing Human Genomic Data for Research?