Cystic Fibrosis Trust and CF Europe Community Afternoon

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Location

Location

The Arena and Conference Centre (ACC)

King's Dock

Port of Liverpool, King's Dock Street

Liverpool

L3 4FP

United Kingdom

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CYSTIC FIBROSIS TRUST and CF EUROPE COMMUNITY AFTERNOON

Saturday 8 June 2019

Following on from the 42nd Annual European Cystic Fibrosis Conference (ECFS), the Cystic Fibrosis Trust is hosting a half day meeting in Liverpool.

Event agenda below*

12:30 - Arrival, refreshments, meet the Cystic Fibrosis Trust team

13:15 - Open & welcome, Professor Kevin Southern

13:20 - Recap on main ECFS, Professor Jane Davies

An opportunity to hear the latest news and science from Europe's largest scientific and clinical research conference.

13:45 - ECFS patient registry, Jacqui Van Rens

The European Cystic Fibrosis Society's Patient Registry helps us make comparisons across Europe on healthcare and wellbeing.

14:15 - Infection control considerations, Professor Andy Jones

Infection control is among the highest priorities for everyone with CF every day of their lives. Prof Jones shares the latest knowledge and practical insight on dealing with this challenge.

14:45 - Coffee break

15:15 - In conversation: Getting older with CF - Dr Su Madge

The median age of people with CF across Europe has been growing every year, but what opportunities and challenges does this bring?

16:00 - New therapy development, Professor Kevin Southern

With major new developments in cystic fibrosis treatment, Prof Southern describes the latest new data and what new medicines the next decade may bring.

16:30 - Thanks and Close, David Ramsden, CEO, Cystic Fibrosis Trust

17:00 - End

*Note the agenda may be subject to change

We plan to live-stream broadcast the sessions online and also make them available on demand after the event for anyone unable to attend in person.

There will be opportunities for both the online and in-person audiences to interact, ask questions and share experiences during the afternoon.

For those attending in person, there will also be opportunities throughout the afternoon to meet staff from the Trust and find out more about what we do.

FAQs

Is the event for all those with an interest in cystic fibrosis?

The agenda will appeal to everyone with an interest in cystic fibrosis and has been desiged to give practical information and insights for our audience from across the European CF community.

Is the conference open to people with cystic fibrosis?

As meetings and conferences are places where cross-infection could occur, the conference is not open to registration for people with cystic fibrosis.

Instead, we will be offering on-line attendance through live streaming, digital forums and social media to enable people with cystic fibrosis to view all of the sessions and interact safely. More information will be posted closer to the event.

Is there a delegate fee to attend?

The event is free to attend.

What are my transport / parking options getting to the event?

Travelling to the ACC in Liverpool is very easy, whichever method you choose. Full details of access via car, train, plane or boat can be found here. Car parking information can be found here.

The conference will be filmed and photography will be taken throughout, images may be used online and in future Trust marketing and communications. If you have any questions about this, please speak to a member of Trust staff during the conference.

Date and Time

Location

The Arena and Conference Centre (ACC)

King's Dock

Port of Liverpool, King's Dock Street

Liverpool

L3 4FP

United Kingdom

View Map

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