Delivering different news to families by healthcare professionals

Delivering different news to families by healthcare professionals

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Delivering different news to families by healthcare professionals

About this event

The first 1001 days, from conception to the time a child reaches two years of age, are critical for their physical, emotional and cognitive development. When it is identified that a baby has a disability or illness during this period, it can present as a different parenting journey from the usual expectations. Delivering this type of different news to parents must be done sensitively and compassionately by professionals.

What will he webinar cover?

In this webinar we share research findings on different approaches to delivering different news which will equip healthcare professionals with the skills and knowledge to ensure parents are supported with care, compassion and sensitivity when they need it the most.

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Our Speakers

Dr Esther Mugweni:

Dr Esther Mugweni is an experienced strategic leader in applied Public Health research and evaluation, impacting health policy and practice. With a PhD in Public Health from the University of Leeds, Dr Mugweni generates insights and intelligence from linked data and qualitative experiences to inform action. She has a specific interest in improving outcomes for families in the first 1001 days as part of the prevention of mental ill-health across the life course. Her strengths like in implementation science and she has worked as a mixed-methods researcher for over sixteen years. She was the Chief Investigator for the HEE funded study to develop a training intervention to improve how healthcare professionals inform families about their child having a congenital anomaly in the first 1001 days of life. Over 250 healthcare professionals have now received this training. Findings from the study are published in various journals, reports, policy documents and blogs.

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Dr Judith Johnson:

Dr Judith Johnson is an HCPC-registered Clinical Psychologist based at the University of Leeds. She holds a PhD in Psychology from the University of Manchester and a ClinPsyD (practitioner doctorate) from the University of Birmingham. She is an expert in news delivery in obstetric ultrasound. Her work in this area has been published in Radiography, Sonography, and BMUS Ultrasound journals and has been featured on BBC News. Her INDIRA news delivery guidelines for delivering news in ultrasound have been incorporated into the Society and College of Radiographers and British Medical Ultrasound Society guidelines and are now acting as the foundation for a Communication Coaching intervention which is being evaluated in sonographers.

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Angie Emrys Jones:

After leaving school with no particular direction Angie undertook a variety of skilled jobs within the health sector whilst searching for the 'right fit’. Little did she know that fit would come from the decision to start a family and ultimately the arrival of her middle child who is gifted with an extra chromosome and the ability to be the perfect leveller. What made her family extraordinary (yet fantastically ordinary at the same time) awoke a passion to share the lived family perspective of having a child with a learning disability in today’s world and ensure that others heard that realistic story. Angie works with Positive About Down Syndrome supporting new parents and Maternity Units and is a Founding Officer of the National Down Syndrome Policy Group.

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