Embedding and standardising public benefit in sensitive data research

About the event

This is a joint session with PEDRI (Public Engagement in Data Research Initiative).

The session will examine what considerations need to be taken into account from different perspectives in establishing whether there is public benefit in any given research project which uses sensitive data.

The session will then give a brief overview of the SATRE (Standardised Architecture for Trusted Research Environments) project and consider what additional guidelines for public involvement are necessary in a federated system and how this can help determine whether proposed research will have a public benefit.

Participation at this event by public contributors attracts an honoraria of £30 per session, following HDR UK rates. Participants will receive an email from DARE UK following the event, to claim the payment.

Event objectives

• To learn more about public benefit in sensitive data research from different perspectives;
• To consider how additional guidelines for public involvement in a federated system could help determine whether proposed research projects will have a public benefit;
• To discuss what could be included in those guidelines to ensure all approved sensitive data research benefits the public.

Speakers

Katie Porter, HDR UK

Samaira Khan, HDR UK

Simon Li, SATRE

Who should attend

Members of the public

Stakeholders from the TRE Community

Further Details

This meeting will be on Zoom. Please download or update this app before the meeting commences.

Background information

• National Data Guardian: What do we mean by public benefitDefining Public Benefit for data use
• Introduction to the SATRE Project
• Engaging with a new TRE Specification