3rd EuRRECa Project Group: Monday 12th April 2021, 10:45-13:15 CEST

Full Programme

10:45 EuRRECa Project Group Meeting (Zoom)

10:50 – 11:00 Introduction & summary of activities over last year - Faisal Ahmed

11:00 – 11:10 The EuRR-Bone project – Natasha Appelman-Dijkstra

11:10 – 11:20 e-Reporting of Rare Conditions (WP06) –Salma Ali

11:20 – 11:30 Core Registry (WP06) – Ana Luisa Priego

11:30 – 11:40 Developing a list of affiliate registries (WP03) – Salma Ali, Yllka Kodra

11:40 – 11:50 Developing core & generic outcomes (WP04, WP05, EuRR-Bone) – Ana Luisa Priego

11:50 – 12:00 WP discussions

12:00 – 13:10 Projects (maximum of 10 mins each)

- Calcium & Phosphate - Agnes Linglart

- Hypothalamic & Pituitary – Mehul Dattani

- Thyroid – Edward Visser

- Adrenal – Nicole Reisch

- Sex Development & Maturation – Anna Nordenstrom

- Glucose & Insulin – Zdenek Sumnik

- COVID19 Project With ESE – Jillian Bryce

13:15 Project Group Meeting Ends