Family Experiences of Vegetative and Minimally Conscious States
Wednesday, 17 September 2014 from 16:00 to 19:00 (BST)
Family Experiences of Vegetative and Minimally Conscious States – Launching a new online module for HealthTalk
In conjunction with;
CDoC (University of York & Cardiff University)
Join us for the launch of a new online resource about family experiences of vegetative and minimally conscious states. The new Health Talk online module was created by Professor Jenny Kitzinger and Professor Celia Kitzinger who co-direct the Cardiff-York Chronic Disorders of Consciousness Research Centre cdoc.org.uk. This initiative was supported by an ESRC ‘Knowledge Exchange’ grant [ref: ES/K00560X/I]. This online resource draws on in-depth interviews with 65 people with a relative in a ‘coma’ and includes 250 filmed clips in which family members describe their experience of intensive care, diagnosis, rehabilitation, and long-term care, exploring the impact on themselves and their families. They also reflect on decision-making including decisions about serious medical treatment. The module will provide important support and information for families and clinicians, and will be invaluable in helping the communication between them. There will be short talks from a panel including the module creators and the family members and clinicians who were interviewed for the resource as well as an opportunity to view the site. The talks will be followed by drinks and canapés and an opportunity to meet others involved in this important area.
healthtalk.org (formerly healthtalkonline) is a charity website that provides information on a range of more than 85 illnesses and other health-related issues though real life experiences shared on video, audio and in text format. Thousands of people have shared their experiences to help others in the same situation. Within each health issue covered on the site, you can find out about the full range of experiences from finding out that something was wrong and making treatment decision to changes in family life and work. For each issue covered on the website researchers travel around the country with a video camera, interviewing 30-60 people in their own homes” explains Sara Ryan, Research Director for the Health Experiences Research Group. “We use rigorous research methods to ensure that the full range of experiences is captured and shown on the website, not just the more sensational stories or hearsay you might find elsewhere online”.
Do you have questions… contact the organizer:
Celia Kitzinger, Co-Director of the York-Cardiff Chronic Disorders of Consciousness Research Centre: email@example.com
Please contact the organiser for details of disabled access.
When & Where
York-Cardiff Chronic Disorders of Consciousness Research Centre
About York-Cardiff Chronic Disorders of Consciousness Research Centre
We are a multi-disciplinary group of researchers at the University of York and Cardiff University exploring the social, cultural, ethical, legal and historical dimensions of coma, the vegetative and the minimally conscious state. We are grateful for funding from both universities and from the Economic and Social Research Council [ref: ES/K00560X/I] and the Wellcome Trust [ref: 097829] through the Centre for Chronic Diseases and Disorders (C2D2) at the University of York. For more information about our academic publications (all open access), and the training we offer to medical and legal practitioners, please see our website cdoc.org.uk.