Saturday 17th November 2018 9:30am – 16:30pm

Birmingham Children’s Hospital, Steelhouse Lane, Birmingham, B4 6NH

09:00 Registration

09:30 Welcome & Opening remarks

09:45 Dr. Nick Shaw - Overview of Fibrous Dysplasia in Children, Management & Transition from Child to Adult Services

10:15 Dr. Kassim Javaid – Overview of Fibrous Dysplasia in Adults, Common Myths and Misunderstandings

10:45 Questions

11:00 Break

11:15 Dr. Joseph Abbott – When to Consider Optic Nerve Decompression and Neurosurgical options

12:00 Heather Ryan – Housing, Jobs and Benefits

12:30 Lunch

13:15 Dr. Shahzada Ahmed - Neurosurgery

13.45 Dr. Kassim Javaid – Research Update – Rudy Study & James Lind Alliance Study - Using Patient Data to Improve Care

14:15 Jane Freebody – Physiotherapy and Associated Treatments (TBC)

14:45 Break

15:00 Feedback from Carers, Parents, Children and Adults -

What I Wish I Knew Then - Discussion on Diagnosis, Children’s Problems and Adult Problems

16:00 Dr. Kassim Javaid – Launch International Pathway for Treatment of Fibrous Dysplasia for Adults and Children & What Your Dr. Needs to Know

16.15 Summary and closing remarks