Finding the gaps & closing the gaps. Dying, death, bereavement
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PCPLD Network Annual Conference
About this event
Finding the gaps & closing the gaps
Dying, death, bereavement - and people with learning disabilities
16th September 2021
Please note: this event will be held online
Please note : A recording of the event will be made available to paid delegates only for a limited period of time.
16th September 2021
10:00-15:00
Conference Chair: Professor Irene Tuffrey-Wijne
Co-Chair Peter Allum
Time Session
10:00-10:10 Welcome and introduction
Gemma Allen, Chair PCPLD Network
Professor Irene Tuffrey-Wijne, Trustee PCPLD Network
Peter Allum, Specialist Advisory Group Member PCPLD Network
10:10- 10:15 GRASSroots
10:15-10:45 Plenary 1 Professor Mark Taubert, NHS Palliative Medicine Consultant and Professor Cardiff University School of Medicine. “Igam Ogam” Pandemic advance care plan experiences in Wales
10:45-11:15 Plenary 2 David Harling, Head of Learning Disability Nursing, NHS England. 'Assuring the valuable contribution of learning disability nurses in palliative care'
11.15- 11.30 Refreshment break
11:30-12:00 Conference papers
Dr Thomas Fretwell- The Adult neurodisabillity MDT: Improving Advance Care Planning in those with Complex Conditions
Professor Stuart Todd- Last Days of Life in 12 months of COVID19: Patterns of death and dying in care settings for adults with learning disabilities in the UK
Gemma Allen, Dr Jed Jerwood and Dudley Voices for Choice- No Barriers Here: Advance care planning and people with intellectual disabilities
12:00-12:45 Lunch
12:45-13:00 Digital poster presentation
Sarah Helton How do children with severe learning disabilities or profound and multiple learning disabilities communicate grief? A literature review.
Tina Morris and Sarah Jaramillo-Fernadez Finding the Gaps and Closing the Gaps- Good
Sue Marsden- Mind the gap- widening access to Hospice care for people with a Learning Disability: initial outcomes
13:00-13:30 Afternoon plenary
Dr Jo Elverson, Consultant in adult palliative medicine, St Oswalds Hospice. Hello- Goodbye! Getting the best out of transition to adult health services
13:30-14:10 Conference papers
Louise George- The West of England Learning Disabilities Collaborative
James Norris- Digitalising and improving postural assessment in Wales- Health Hack and the Postural Care Passport’
Nicola Thurgood- Dying to Talk
Sue Marsden- How do carers prepare and support people with learning disabilities when facing bereavement
14:10-14:30 Dr Kathryn Mannix, Retired Palliative Care Physician and author of ‘With the End in Mind’ and ‘Listen’ - Tender Conversations
14:30-15:00 Questions from the audience and panel Q&A
Conference programme updated 19 July 2021.