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Findings from the NCARDRS rare disease data collection discovery phase

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This webinar is about the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) which is part of NDRS

About this event

As part of the National Disease Registration service (NDRS) webinar series, this webinar will cover:

  • NCARDRS supporting specialised services
  • The impact of COVID-19 amongst people with rare autoimmune rheumatic disease in England
  • Understanding histiocytic disease – describing the largest population based cohort

Speakers:

Dr Peter Stilwell, Higher Rare Disease and Cancer Analyst, NDRS

Dr Hanhua Liu, Senior Cancer Intelligence Analyst, NDRS

Mary Bythell, Head of Rare Disease Registration, NDRS

Dr Fiona Pearce, NIHR Advanced Fellow and Clinical Associate Professor, University of Nottingham

Dr Megan Rutter, Clinical Research Fellow, University of Nottingham

Although open to the public, this webinar may be more useful for those working in healthcare, commissioning, public health, policy or for a rare disease charity or patient group.

The webinar will be hosted on MS Teams and it will be recorded and uploaded to the NDRS website shortly after. There will be time for Q&A at the end of the talk.

You will be sent joining instructions for this webinar 2 days beforehand.

***PLEASE CHECK YOUR JUNK FOLDER FOR THE EMAIL FROM EVENTBRITE WITH THE LINK TO JOIN***

If you have any questions about this webinar or registering to attend, please contact NDRSengagement@phe.gov.uk.

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Organiser National Disease Registration Service (NDRS)

Organiser of Findings from the NCARDRS rare disease data collection discovery phase

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