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Foyle and North West Rare Disease Forum
Wed 17 February 2016, 12:30 – 14:00 GMT
The Northern Ireland Rare Disease Partnership (NIRDP) would like to invite you to the launch of the Foyle/NW Rare Disease Forum, which will provide support and advocacy for people with rare diseases in the Northwest.
There will be an introduction from Dr Fiona Stewart, MBE, Consultant in Medical Genetics with the Northern Ireland Regional Genetics Service, who runs the Genetics clinic in Altnagelvin Hospital.
Mark Durkan, MP, will also be there showing his support for people with rare disease in the Northwest.
The NIRDP is a unique partnership of those living with a rare disease; organisations representing them; health professionals; science and industry; health policy makers and academics.
Refreshments will be provided - please let us know if you have any particular dietary requirements.