Foyle and North West Rare Disease Forum
The Foyle and North West Rare Disease Forum - part of the Northern Ireland Rare Disease Partnership (NIRDP) - welcomes anyone affected by rare disease to a meeting at the City Hotel.
We connect families living with rare disease, removing isolation and creating a shared forum for information exchange and mutual support.
Fiona Mc Laughlin, Chair of the NIRDP, and Christine Collins, former Chair and Board Member, will be there listen to the concerns of local members. They will also be updating us on engagement opportunities and current programmes that are informing service design and planning for future services.
Refreshments will be provided. Let us know if you have any special dietary requirements. Children welcome to attend with parents
Contact Sandra Campbell on 07512 880466 or firstname.lastname@example.org