During this workshop we aim to bring together the fantastic UK research community who are either currently involved in, or who are interested in, Fragile X Syndrome research. We are keen to promote further interactions amongst UK-based (and EU-based) researchers who investigate the condition, with a view to supporting the development of a network of researchers and to investigate opportunities for future collaborations such as: joint projects, data sharing, protocol sharing and harmonisation of measures. The aim is that together we can further develop work addressing key issues of concern to those individuals and families living with fragile X. 

In order to help acheive our aims, the workshop will involve a number of different elements, including: keynote talks on themes and research approaches; flash talks and posters to give overviews of current UK research into Fragile X Syndrome; discussion sesssions. This workshop is a collaboration between the Fragile X Society and the University of Oxford. 

Draft Agenda

9.00am: Registration

9.30am: Welcome and introduction 

9.40am: Keynote: A family perspective on living with Fragile X and the value of research

10.00am: 5 minute "flash talks" on current Fragile X research projects*

10.45am: Coffee break

11.15am: Keynote: From genes to behaviour: Mutlidisciplinary research into Fragile X Syndrome. Dr David Hessl, MIND Institute, UC Davis, California. 

12.15am: 5 minute "flash talks" on current Fragile X research projects*

12.45pm: Lunch

2.00pm: Poster presentations*

2.45pm: Keynote: Experiences and lessons from consortium working in Tuberose Sclerosis Complex: Professor Patrick Bolton, King's College London

3.30pm: Facilitated small group discussions- "Working together to move forward"

4.00pm: Group feedback and discussion

Evening: Optional Networking Dinner. Venue TBC. 

Registration Deadline: 23rd December. Please register your interest in the dinner upon purchasing your tickets. Accommodation options and further logistical information will be available on this site shortly.  

*To apply to present detils about your research as a poster or as a 5 minute "flash talk", please submit an abstract with your registration. We encourage all those who are currently or who have recently completed relevant projects to consider submitting an abstract. Abstract Deadline: 14th October. Decisions made by 5th December. 

If you have any queries, please contact the event organisers: Prof Gaia Scerif (gaia.scerif@psy.ox.ac.uk) or Becky Hardiman (becky@fragilex.org.uk).