During this workshop we aim to bring together the fantastic UK research community who are either currently involved in, or who are interested in, Fragile X Syndrome research. We are keen to promote further interactions amongst UK-based (and EU-based) researchers who investigate the condition, with a view to supporting the development of a network of researchers and to investigate opportunities for future collaborations such as: joint projects, data sharing, protocol sharing and harmonisation of measures. The aim is that together we can further develop work addressing key issues of concern to those individuals and families living with fragile X.
In order to help acheive our aims, the workshop will involve a number of different elements, including: keynote talks on themes and research approaches; flash talks and posters to give overviews of current UK research into Fragile X Syndrome; discussion sesssions. This workshop is a collaboration between the Fragile X Society and the University of Oxford.
9.30am: Welcome and introduction
9.40am: Keynote: A family perspective on living with Fragile X and the value of research. Dr Lucia Elghali
10.00am: 5 minute "flash talks" on current Fragile X research projects*
10.45am: Coffee break
11.15am: Keynote: From genes to behaviour: Mutlidisciplinary research into Fragile X Syndrome. Dr David Hessl, MIND Institute, UC Davis, California.
12.15am: 5 minute "flash talks" on current Fragile X research projects*
2.00pm: Poster presentations*
2.45pm: Keynote: Experiences and lessons from consortium working in Tuberose Sclerosis Complex: Professor Patrick Bolton, King's College London
3.30pm: Facilitated small group discussions- "Working together to move forward"
4.00pm: Group feedback and discussion
Evening: Optional Networking Dinner. St Catherines College. Places are limited, so please register via eventbrite.
Due to unforeseen circumstances, we have had to move our venue for the workshop from the Department of Experimental Psychology to a whole 200 metres away, to St. Catherine's College, Manor Road Oxford, OX1 3UJ. You can find details and a map at:
In particular, for the main meeting we are booked in:
The break out rooms are all within 2 minutes of this building.
Parking on site is available ONLY for people with limited mobility or other additional needs. Please contact firstname.lastname@example.org to reserve if required. The most convenient parking methods are park and ride; or car parks in the centre (e.g., St. Clement's, a 15 minutes walk from College; https://www.oxfordshire.gov.uk/cms/content/street-parking; https://www.oxford.gov.uk/directory_record/345/st_clements_car_park/category/54/suburban_car_parks_outside_the_city_centre )
The following sites will be very useful for finding accommodation:
If you have any queries, please contact the event organisers: Prof Gaia Scerif (email@example.com), Dr Hayley Crawford (firstname.lastname@example.org) or Becky Hardiman (email@example.com).