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From Patient Engaged to Community Engaged Research to Enhance Health Servic...

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Iris Murdoch Building

The University of Stirling

Stirling

FK9 4LA

United Kingdom

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From Patient Engaged to Community Engaged Research to Enhance Health Services for People Who Use Substances

Keynote: Dr Bernie Pauly, Associate Professor, School of Nursing/Scientist Canadian institute of Substance Use Research (CISUR), University of Victoria, Canada; and Honorary Professor, University of Stirling.




Abstract

There is a growing emphasis on the importance of involving members of the public in the development and conduct of health research. Such research is often described as patient engaged or patient oriented research. The primary goal of such research is to improve the relevance of health research and ultimately the efficiency, and effectiveness of health services, policies and programs.

Policy and funding initiatives such as INVOLVE in the UK, PCORI (Patient Centred Outcomes Research Institute) in the US and SPOR (Strategies for Patient Oriented Research) in Canada have been launched to facilitate the shift from researcher driven to patient driven research. Frequently, such frameworks implicitly focus on patients as individuals, acute health services rather than community or public health services, and provide little guidance on how to actively and meaningfully involve the public in health research.

In this presentation, insights from a Canadian Institute of Health Research SPOR grant focused on enhancing access to primary care services for people who use substances and experiencing health inequities will be highlighted. Members of two peer run organizations for people who use substances were actively involved as community researchers in all phases of the research from conceptualization to presentation of findings. The benefits of community based participatory research as a methodology for patient engaged research, research team roles, relationships, and the benefits and challenges of collaboration, will be discussed. In particular, key issues related to addressing power inequities, development of trust and the need for an action orientation will be examined, and recommendations for meaningful community engaged research will be provided.

The event is being hosted by the Salvation Army Centre for Addiction Services and Research based at the University of Stirling.

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Iris Murdoch Building

The University of Stirling

Stirling

FK9 4LA

United Kingdom

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