Frontotemporal Dementia (FTD) Rare Dementia Support Meeting

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Date and Time

Location

Location

6th Floor, Wellcome Trust

Wellcome Trust

Gibbs Building, 215 Euston Road

London

NW1 2BE

United Kingdom

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Event description
Frontotemporal Dementia (FTD) July 2019 Meeting

About this Event

Date & Timings: 11:00 – 14:00 (arrival, registration and tea and coffee from 10:30)

** please note, if this is your first support group meeting, we will be running a brief introductory session from 10am if you would like to arrive a little early to be introduced to other people here for the first time and in case you have any questions or concerns about how the session will work, and mostly so that we can say hello! Please let us know when you RSVP if you would like to attend this session.

Location: 6th floor, Wellcome Trust, Gibbs Building, 215 Euston Road, London NW1 2BE

Directions: https://wellcome.ac.uk/about-us/contact-us

Agenda: The support group will start with a talk by Dr Liz Sampson who will discuss pain assessments and management in FTD and motor neurone disease. Afterwards, one of our members will give a talk about her experience with RDS. There will then be a lunch break followed by three group discussions. These will focus on clinical Q&A’s, activities to do with someone living with FTD and regional support.

For those of you unable to join us in person, we will be recording this support group, which means you can watch the meeting on our YouTube Channel after the meeting.

If you have any queries please contact: meetings@raredementiasupport.org

Please note: We hold our London meetings in meeting venues which are external to UCL. On occasions the host venue organisations request a list of people’s names who have confirmed they will be attending the meeting, for security purposes. Rare Dementia Support will provide paper copies of delegate names to the external host organisations up to 24 hours before the meeting. The list of names will be titled with the date and time of the meeting only – we will not disclose the nature or subject of the meeting on the name list. The list of names will be collected by UCL staff after the meeting has taken place. External host organisations will not retain the names of delegates or other information.

Date and Time

Location

6th Floor, Wellcome Trust

Wellcome Trust

Gibbs Building, 215 Euston Road

London

NW1 2BE

United Kingdom

View Map

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