£11 – £173.07

Haemochromatosis UK Annual Conference

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Location

Location

Novotel Coventry M6/J3 Hotel

Wilsons Lane

Coventry

CV6 6HL

United Kingdom

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Refund Policy

Refunds up to 30 days before event

Event description

Description

Our annual conference is going to be held in Coventry and be bigger and better than ever. We are also be adding the option of a conference dinner for the first time (Friday 12th). The three course meal will be hosted by the Chief Exec of HUK and feature special guests including the Lord Mayor of Coventry and the key conference speakers. We believe the dinner will offer an unrivalled opportunity to get to know other members and have interesting discussions with haemochromatosis experts.

Programme

08:45 Registration, tea and coffee

09:20 Welcome and Introduction

David Head MBA
Chief Executive, Haemochromatosis UK
“The future for haemochromatosis”
David will introduce our theme for the day and set the scene for an outstanding programme of presentations.

09:30 Presentation
Professor Edward (Ted) Fitzsimons
Consultant Haematologist, University of Glasgow
“The future for haemochromatosis patient pathways”
Professor Fitzsimons is a respected clinician and researcher. He co-authored the new clinical guidelines for the treatment of iron overload and is a medical adviser to the All Party Parliamentary Group for Genetic Haemochromatosis. Today he will present an overview of haemochromatosis and discuss how the new clinical guidelines are being adopted and will improve patient pathways and outcomes.

10:15 Presentation
Dr Patrick Kiely
Consultant Rheumatologist, St George’s Healthcare Trust
“Haemochromatosis Arthropathy: What current conundrums mean for future research”
Dr Kiely is a leading expert on haemochromatosis joint pain and has recently published a research paper entitled “Haemochromatosis arthropathy – a
conundrum of the Celtic curse” He will discuss the specific form of arthritis that affects haemochromatosis patients and what research can tell us about the future of diagnosis and treatment.


11:00 Refreshment break with tea, coffee and biscuits

11:30 Presentation
Professor David Melzer
Professor of Epidemiology and Public Health, University of Exeter Medical School.
“New research: Haemochromatosis is linked to more disease than previously thought”
Prof. Melzer et al, recently published ground breaking research into haemochromatosis and its links with other conditions. The UK Biobank study of 500,000 volunteers provided a world leading opportunity to study ageing. Linking volunteers’ anonymised genetic data to NHS hospital records is provided a unique opportunity for health research.

12:15 Panel Session
Professor Edward (Ted) Fitzsimons, Dr Patrick Kiely and Professor David Melzer
“Question Time: What does the future hold?”
Our three eminent speakers will take questions from the audience about their work, and their vision of its impact on future clinical practice.

12:45 Lunch, and opportunity to talk to other patients, our speakers, HUK trustees and our staff,

13:45 Please reconvene for the afternoon session

14:00 Panel Session
Neil McClements.
Haemochromatosis UK Trustee and Patient Safety Advocate.
Yvonne Francis.
Clinical Nurse Specialist and Venesection Expert from Guys and St Thomas’s NHS foundation Trust.
Gerri Mortimore.
Lecturer at The University of Derby, School of Nursing and Professional Practice.
“Applying best practice: The venesection clinics of the future”
Our three venesection experts will take questions from the host about the ongoing venesection best practise project and where treatment of haemochromatosis is headed in the future.

14:30 Presentation
NCMIThe future of haemochromatosis diagnosis using Artificial Intelligence ( Further details TBC)

14:50 Presentation
David Head
Chief Executive of Haemochromatosis UK
“And our survey says…”
David will report of the recent patient survey and the work being done on the basis of the results.

15:10 Presentation
Mr Mark Pawsey
MP and Chair of the APPG for Genetic Haemochromatosis.
“The impact of the APPG on the future of patient care”
Mr Pawsey will update the audience on the current work going on in parliament to improve outcomes for haemochromatosis patients.

15:30 Refreshment break with tea, coffee and biscuits

16:00Presentation

Dr Roseanna Brady
Health Psychologist and Haemochromatosis UK Trustee.
“It’s health Jim, but not as we know it”
Roseanna will discuss the psychological aspects of haemochromatosis and what can be done to improve patient experience.

16:20 Presentation (TBC)

16.40
Ms Corrina Towers
Chair of Haemochromatosis UK
"The Future of Haemochromatosis UK"
What's Next for HUK?

17:00 Chairs’ Closing Remarks
Corrina Towers

17:05 Comfort break and departure of non-members

17:20 Annual General Meeting of Haemochromatosis UK members (separate agenda available to members)

18:00 Close of event

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Date and Time

Location

Novotel Coventry M6/J3 Hotel

Wilsons Lane

Coventry

CV6 6HL

United Kingdom

View Map

Refund Policy

Refunds up to 30 days before event

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