In 2007 our beautiful 2 year old daughter, Hollie, was diagnosed with Niemann Pick Type C ('NP-C') an extremely rare and devastating genetic condition which causes neurological decline and childhood dementia and for which there is currently no cure. Less than 50 children suffer from this condition in the UK and only 1000 worldwide.
Hollie is the inspiration behind the Hope for Hollie Foundation, a registered grant giving charity which is working to make lifetime a reality for those fighting NP-C.
This website is the central point for the activities of the Hope for Hollie Foundation, registered charity number 1156216. It is regularly updated with upcoming events and fundraising activities and provides information relating to the governance of the charity and NP-C.