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I-DSD/CAH User Group Meeting 2020

The I-DSD/I-CAH User Group Management Team

Wednesday, 9 September 2020 from 13:00 to 16:00 (BST)

I-DSD/CAH User Group Meeting 2020

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I-DSD/CAH user group meeting 7 Sep 2020 Free  

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Event Details

Meeting of the I-DSD/CAH registry users group

 

The meeting is free to attend for registered users of the I-DSD/I-CAH Registry and their associates.  A Zoom Webinar link will be distributed to those who have registered.

 

The final programme is now available on the meeting website

 

 Zoom Webinar

UK Time

 

1250

Start

1300

Welcome

1300 Session 1 – DSD (submitted questions to be answered at the end of session)

 

Management of gonads in adults with AIS

Lloyd Tack

 

Clinical and histological outcomes in 45,X/46,XY males

Marie Lindhardt Johansen

 

Trends in gonadectomy in DSD

Angela Lucas-Herald

 

Submitted Q & A

 

1330 Session 2 – DSD (questions to be answered at the end of session)

 

Testosterone replacement therapy in adolescence

Mariana Stancampiano

 

Long term outcome of 46, XY Leydig Cell Hypoplasia

Alessandra Boncampagni

 

Gonadal outcome in 17b-HSD def and 5a-reductase def

Sabine Hannema

 

Submitted Q & A

 

1400     Break for 10 mins

1410 Session 3 - CAH (submitted questions to be answered at the end of session)

 

Optimizing mineralocorticoid replacement in CAH

Riccardo Pofi

 

Changes in surgical practice in CAH

Alexander Springer

 

Adrenal insufficiency related adverse events in CAH

Salma Ali

 

Submitted Q & A

 

1435 Session 4 - CAH (submitted questions to be answered at the end of session)

 

Clinical care and outcomes in rare forms of CAH

Irina Bacila

 

Cardiometabolic morbidity in adults with CAH

Beatrice Righi

 

Growth-related characteristics in CAH patients

Mallory Farrar

 

Questions and answers

 

1500

Break for 10 mins

 

1510 Session 5 – Updates (submitted questions to be answered at the end of session)

 

I-DSD/CAH

Faisal Ahmed

 

IFCAH

Michel Polak

 

ESPE DSD WG

Tulay Guran

 

Questions and answers

 

1545

End

 

 

 


Do you have questions about I-DSD/CAH User Group Meeting 2020? Contact The I-DSD/I-CAH User Group Management Team

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When & Where


Webinar


United Kingdom

Wednesday, 9 September 2020 from 13:00 to 16:00 (BST)


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Organiser

The I-DSD/I-CAH User Group Management Team

Based in the Office for Rare Conditions, Glasgow, the I-DSD/I-CAH User Group Management Team organise the biennial meetings of Clinicians and Researchers that use the I-DSD/I-CAH registries to conduct research studies.  The user group meetings allow researchers the opportunity to update the community on the studies that have been performed and encourage the development of new studies.

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