
I-DSD/CAH user group meeting
Date and time
Location
Agia Sofia Children's Hospital Amphitheatre
Thivon 1, Athina 115 27
115 27 Athens
Greece
Refund policy
Description
Meeting of the I-DSD/CAH registry users group
The meeting is free to attend and will be followed by a dinner within a short walk of the venue
Participants should arrange their own travel and accommodation.
The final programme is now available on the meeting website
Venue: Agia Sofia Children’s Hospital – Amphitheatre, Athens
Time
Topic
Speaker
1700
Start
1715
Welcome
Anna Nordenstrom
Chair
Anna Nordenstrom & Nils Krone
Completed Studies (process and results) (8 mins and 2 mins questions)
1730-1740
Trends in Sex Assignment
Zosia Kolesinska
1740-1750
Outcome in PAIS
Angela Lucas-Herald
1750-1800
Birth Weight in Different Etiologies of DSD
Sukran Poyrazoglu
1800-1810
Fludrocortisone & Salt in Young Children with CAH
Uta Neumann
Ongoing studies (process and results) (8 mins and 2 mins questions)
1810-1820
Assessing the Value of I-CAH Registry for Pharmacovigilance
John Porter
1820-1830
Outcome in 45X/46XY
Marie Lindhart Johansen
1830-1840
Growth Patterns in XY DSD with SGA
Martine Cools
1840-1850
Identifying Novel Forms of AIS
Nadine Hornig
1850-1900
Outcome in Girls with PAIS
Guilherme Guaragna Filho
1900-1930
Break
1900-1910
Parent Reported Outcomes In CAH & DSD
Salma Ali
1910-1920
Genetics of DSD Associated with CV Abnormalities
Ken McElreavey
1920-1930
Trends in Gonadectomy in DSD
Angela Lucas Herald
2000-2020
Future Developments
Streamlining– Optimizing Data Support Collection (10 min – 10 min)
Membership of I-DSD/ I-CAH, written information
Jillian Bryce, Faisal Ahmed
2020-2030
Open Discussion, AOB
2030
Finish
Meal after meeting – Agora restaurant (a short walk from the venue) - €25 for 3 courses incl.wine