LIDA Seminar: Engaging patients in research - UseMyData and BCI UK

The Leeds Institute for Data Analytics is pleased to present the latest seminar in the series showcasing data analytics.

This seminar focusses on engaging patients in data research. In particular, it draws upon the UseMyData movement, http://usemydata.org, and the Bowel Cancer Intelligence UK initiative, bci.leeds.ac.uk. This seminar is relevant to a) researchers who want to engage patients in their research and b) patients who are interested in engaging with research.

Agenda

Introduction

Professor Eva Morris, Leader of the Cancer Epidemiology Group and Bowel Cancer Intelligence UK (BCI UK)

Patient involvement in data – the development of the UseMYData patient movement

Chris Carrigan, Senior Research Fellow and UseMyData expert advisor

Integration of consumer perspectives

Azmina Verjee, former bowel cancer patient and co-chair of the BCI-UK Patient-Public Group

Patients have data too

Andy Smith, Senior Data Manager, former cancer patient and UseMYData member

Collaboration with charity partners to use data to improve local outcomes

Andy Wilson, Yorkshire Cancer Research Engagement Manager

Where next

Professor Eva Morris

Drinks and nibbles will follow in the LIDA Staff Room on Level 11.

We look forward to welcoming you there.