Meeting Centres Support Programme: UK MeetingDem National Conference: 21 Ma...

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University of Worcester Arena

Joel Richards Conference Suite

Hylton Rd

Worcester

WR2 5JN

United Kingdom

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UK MeetingDem National Conference- Tuesday, 21st March 2017

The University of Worcester Arena, Hylton Road, Worcester, WR2 5JN

The Meeting Centres Support Programme (MCSP) was developed following a community needs assessment in the Netherlands. There are now 142 Dutch centres with a national infrastructure that local groups can utilise to bring on new centres. Dutch research has demonstrated positive outcomes for people with dementia and for family carers. Typically a local Meeting Centre is offered 3 days per week supporting 12-17 participants per day in an easily accessible community location and is open to people of all ages and types of dementia. The focus of MCSP is on both the person living with dementia and their family. Evidence-based post-diagnostic psychosocial interventions are provided in a friendly manner geared up to the needs of the local members. It is facilitated by a small team of staff and volunteers trained in the ethos of person centred dementia care and the Adaptation-Coping Model.

Since 2013, we have been part of a JPND (EU Joint Programme for Neurodegenerative Diseases) research project MEETINGDEM with the aim of implementing and evaluating the Dutch Meeting Centres Support Programme (MCSP) model in UK, Italy and Poland and assessing what country specific adaptations were necessary. This has involved translating MCSP concepts and practicalities into a new country context and then assessing the benefits and cost effectiveness. Pilot Meeting Centres have been successfully implemented in all the countries in 2015 following a 12-month period of collaborative community engagement. This conference reports on the implementation, user feedback and effectiveness and cost-effectiveness of MCSP for the first time in the UK.

Aims:

  • To present the key findings for the first time in the UK from the 3-year JPND funded MeetingDem research Programme for the first time within the UK.

  • To reflect on how this evidence-based effective innovation for supporting people with dementia and their families could become part of the dementia care pathway in the UK.

It is expected that many delegates will already understand what a Meeting Centre Support Programme delivers for people living with dementia, families and localities. For those who do not, the main film on the MEETINGDEM webpage provides a good overview. This film (and others from Poland and Italy) will also be shown at the conference half an hour before formal proceedings commence.

Who should attend?

Anyone who is interested in community support of people and families affected by dementia. We are particularly keen to hear the views of those living with dementia and family carers. We will discuss how this innovation could impact on the dementia care post-diagnostic pathway; co-ordination of health and social care providers; Dementia Friendly Communities; Universities; Housing and workforce skills and competencies.

Programme

09.30 - Arrival and registration & film viewing

10:00 - Introduction and Welcome

Professor Dawn Brooker, Director of the Association for Dementia Studies, University of Worcester, UK Meeting Dem lead

10.15 - Meeting Centres Evidence and the MeetingDem Research Project.

Professor Rose-Marie Dröes, Dept. of Psychiatry, VU University Medical Centre, Amsterdam, The Netherlands. Head of MeetingDem Research

10.30 - Adapting the MCSP within different countries

MeetingDem Italian Research team (tbc) from Fondazione Don Gnocchi, Milan, Italy

10.45 - How was the adaptation process in the UK context?

Rhiannon Davies Chief Officer of Dementia Matters in Powys and Chair of Brecon Meeting Centre Initiative Group interviews Meeting Centre Service managers from Droitwich Spa & Leominster

11.00 - The effectiveness of the adapted MCSP in UK, Italy and Poland

Dr Simon Evans, Head of Research at the Association for Dementia Studies, MeetingDem Evaluation Lead, University of Worcester, UK

11.20 - Refreshment break

11:40 - Service user satisfaction and feedback about the MCSP in UK, Italy & Poland

Katarzyna Urbańska, MeetingDem Research team from Wroclaw Medical University, Poland

12.00 - What do people living with dementia and families using the meeting centre in the UK experience?

Meeting Centre Members & Family Members are interviewed about their experience of being supported by Meeting Centres locally.

12.30 - Results of the cost-benefit research in UK, Italy & Poland

Cate Henderson, MeetingDem Research Team, London School of Economics, UK

12.50 - Summing up morning session

Morning Discussant (tbc)

13.00 - Lunch and opportunity to network

MeetingDem members, staff-team, stakeholders & researchers who are happy to be approached about their experiences will be available to chat.

13.45- Welcome back

Afternoon chair (tbc)

13.55 - The way forwards within the UK

Professor Dawn Brooker,

14.00 - Round-table 1 (choice of 6 tables see below)

Facilitated and recorded structured discussion

14.30 - Move table

14.35 - Round-table 2 (choice of 6 tables see below)

Facilitated and recorded structured discussion

15.05 - Afternoon refreshments

15.35 - Feedback from round-table chairs

Build plan for next stage

16.10 - Next steps & actions

Professor Dawn Brooker

16.15 - Reflections from the day and advice to the UK

Professor Rose-Marie Dröes

16.25 - Close and thanks

Afternoon chair

Round Tables

A feature of the afternoon will be participating in 2 round-tables of your choice from the following list. Each table will be led by a facilitator who will make a proposition that everyone will be asked to reflect on. The facilitator will ask everyone in turn for their reaction – going twice round the table. These will be recorded and summarised to the main conference.

Topics

Tables: 1 & 7 - The Dementia Care Pathway

Meeting Centres could form a valuable part of the dementia care pathway post-diagnosis

Tables: 2 & 8 - Collaboration with local health and care providers

Meeting Centres could enable more effective co-ordination between local health and care providers

Tables: 3 & 9 - Dementia Friendly Communities & the Dementia Action Alliance

Meeting Centres could provide a focus for Dementia Friendly Communities

Tables: 4 & 10 - Universities & dementia

Engaging with Meeting Centres could be beneficial for universities

Tables 5 & 11 - Housing and Extra Care housing

Hosting a Meeting Centre could be beneficial for housing schemes

Tables 6 & 12 - Workforce skills and competencies

Meeting centres could provide a focus for skills development in supporting people post diagnosis.

Acknowledgements

MEETINGDEM (2014-17) is led by the VU Medical Center University Amsterdam & focuses on establishing Meeting Centres in the UK, Italy and Poland and evaluating the impact of these Centres after 12-18 months of operation: Many people and organisations have contributed.

FUNDERS: MEETINGDEM is an EU Joint Programme - Neurodegenerative Disease Research JPND http://www.jpnd.eu project number JPND_HC-559-018. The project is supported through the following funding organisations under the aegis of JPND; Italy, Ministry of Education and Ministry of Health; The Netherlands, ZonMw; Poland, NCBR; UK, ESRC Grant reference: ES/L00920X/1

PRINCIPAL & CO-INVESTIGATORS: Rose-Marie Dröes, Franka Meiland, Dawn Brooker, Simon Evans, Shirley Evans, Martin Orrell, Rabih Chattat, Elisabetta Farina , Joanna Rymaszewska & Dorota Szcześniak

IN THE UK: University of Worcester: Dawn Brooker, Shirley Evans, Mike Watts & Simon Evans: LSE Cate Henderson, Amritpal Rehill, Martin Knapp; UCL Martin Orrell; Alzheimer’s Society: Colin Capper, Ruth de Sainte-Croix, Gill Read, Sam Arnold, Ginnie Jacques, Debbie Powney; All the members and supporters at the Droitwich Spa, Leominster and Lutterworth Meeting Centres


For more information please email: dementia@worc.ac.uk

Date and time

Location

University of Worcester Arena

Joel Richards Conference Suite

Hylton Rd

Worcester

WR2 5JN

United Kingdom

View Map

Organiser Mike Watts

Organiser of Meeting Centres Support Programme: UK MeetingDem National Conference: 21 March 2017 at University of Worcester Arena

Mike Watts

Senior Departmental Administrator

Association for Dementia Studies

University of Worcester

Henwick Grove

Worcester

WR2 6AJ

 m.watts@worc.ac.uk

01905 542531

https://www.worcester.ac.uk/dementia

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