Saturday, November 15

MSUK's 2025 Annual Community Conference

By Metabolic Support UK

A day hosted by Metabolic Support UK to bring the inherited metabolic disorder community together for a day of connection and learning.

Date and time

Location

The Studio

7 Cannon Street Birmingham B2 5EP United Kingdom

Agenda

Living well with an IMD!

This session focuses on what it means to live well with an IMD. It will explore how quality of life extends beyond treatment access, highlighting the importance of education, employment, joy, and per...

Low Protein Cooking & Diets

This interactive session will explore practical tips and ideas for managing a low-protein diet. There will be a chance to share favourite recipes, discover new low-protein food options, and exchange ...

IMDs & Mental Health

This session focuses on nurturing mental health and wellbeing by exploring how individuals and families living with IMDs can reconnect with what brings them joy. This discussion will celebrate everyd...

My Life Lived Well: Community Presentations on Living with a Condition

Throughout the day, individuals living with IMDs will share short talks about their experiences of living well with their condition. These personal stories offer genuine insight into daily life and h...

Understanding the Rare Disease treatment landscape in a changing UK healthcare

This session will explore the evolving treatment landscape for rare diseases within the context of a changing UK healthcare system. It will examine current challenges and opportunities in access and ...

True Faces of Rare - photo sessions

You told us you want to see more real people living with IMDs represented in the content we share. So we’re giving you the chance to be part of that change. A professional photographer will be on ha...

Homecare

This session explores what home care is and how people access it, including a look at nursing support. Two roundtable discussions will focus on access and prescription, and participants’ experiences ...

Your Condition! HCU Community

Danae Bartke - HCU Network America

This session will bring together members of the Homocystinuria (HCU) community for an engaging and informative discussion. It will be led by Danae Bartke from HCU America, who will be flying over to ...

Your Condition! Adult Rare Bones Disease Network

Dr Kassim Javaid - University of Oxford

Adult Rare Bone Disease Network meeting, hosted by Dr Kassim Javaid (University of Oxford). This session will bring together healthcare professionals, patient organisations, and individuals living wi...

MSUK Metabolic Advisory Council Insight Meeting

More speakers to be announced! Sessions are subject to change.

Good to know

Highlights

6 hours
In person

About this event

Our 2025 Annual Community Conference will take place on Saturday the 15th of November in Birmingham at The Studio, 7 Cannon St, Birmingham B2 5EP.

Come meet other families and people living Inherited Metabolic Disorders at our 2025 Annual Community Conference. Our event is an opportunity to form friendships and connections across the IMD Community whilst sharing your voice and hearing from a range of speakers.

What's on?

Our Annual Community Conference is really shaping up, to see a full run down of what to expect and all the extra details for the day check out the website events page. Meet the team, meet our speakers, and get a sneak peak at the day's activities!

Already have some burning questions for our sessions? Share them with us now by emailing kerry-sue@metabolicsupportuk.org and catch the answers in the Q&A!

More speakers to be announced! Sessions are subject to change.

The Venue

The venue is accessible with an accessible bathroom. Birmingham New Street Station is the closest station with just a 2 minute walk to the venue, but Snow Hill and Moor Street are also within a walkable distance. There are two carparks around a 10 minute walk from The Studio: NCP High Street (postcode B4 7LN) and NCP New Street (postcode B5 4AN).

For any questions email kerry-sue@metabolicsupportuk.org

Organized by

Metabolic Support UK

Free