This event is a deep-dive into ventilation and respiration for people with muscle-weakening conditions through lived experience stories and community voice. Our aim is to bring the talk of ventilation out of the clinic and into real life: into our travelling ambitions, love lives, parenting journeys, and our everyday lives.
The session will be led by speakers with lived experience of ventilation discussing the relationship between their ventilation use and other important parts of living and identity such as travelling, parenting, intimate relationships and representation of ventilation in mainstream media.
Speakers will give a short presentation on these topics before an opportunity for event attendees to ask questions and discuss experiences. Attendees will also have the opportunity to learn about how they can share their experiences through participating in the research. The research project Everyday Stories of Breathing and Ventilation, part of a larger Wellcome-Trust funded project at the University of Sheffield called Cripping Breath. The aim of the research is learn more about people's experiences of using ventilation, and the researchers are looking for people to take part in two online research interviews.
There will be an open Q&A as part of the session.
Artwork by Inertia Creative
