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myTube launch: an educational resource on tube feeding in MND

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Sheffield Institute for Translational Neuroscience

385a Glossop Road

Sheffield

S10 2HQ

United Kingdom

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SITraN and Sheffield MND Care Centre recently launched myTube - an online education resource about gastrostomy tube feeding in Motor Neurone Disease, aimed at patients and carers. It is also of great value to professional carers and Health Care Practitioners. mytube.mymnd.org.uk

We are holding a formal launch and learning event for myTube, and would like to invite you, as a colleague and friend of SITraN and the MND community to attend. Patients, carers, clinicians and researchers are all welcome.

myTube was co-created with people living with MND and their carers, and you can hear them speak about their experience of taking part at this event, as well as from the team of clinicians and designers/filmmakers who worked with them. We will also be asking you for your feedback and ideas to take myTube forwards.

Speakers:

How Our Experiences Informed the Making of myTube + Question and Answer session
The myTube patient and carer design team - Jason & Liz Liversidge, Terry & Rose Hobbs, Trevor Leigh, Michael Hickman, Dave Booker & Brian Jackson

The ProGas Study and Developing User-led Research Implementation
Prof Chris McDermott, SITraN

The Clinicians' Perspective on the Co-Design Process
Sean White, Home Enteral Feed Dietitian, Sheffield Teaching Hospitals

Linking myTube with the MND Association's Information
Kaye Stevens, Information Manager, MND Association

The myTube Co-Design Process
Cathy Soreny - Filmmaker/Registered General Nurse, Becky Bartlett - Digital Strategist

Evaluating and Implementing myTube
Dr Esther Hobson

myTube was developed with funding from the MND Association, the South Yorkshire branch of the MND Association and Westfield Health Charitable Trust. The MND Association were actively involved in the development and finalisation of the website, and it is now one of their key recommended resources.

FAQs:

Is there disabled access at the venue?
SITraN is fully accessible, and there will space for wheelchairs. If you require any assistance entering the building please phone to discuss this. There are 2 disabled parking spaces at SITraN which cannot be booked and are on a first come first served basis. We have a few visitor spaces. These must be pre-booked, Please phone to book (number below).

What are the parking options for getting to and from the event?
There is no general parking at SITraN, and the area surrounding has very limited on road parking. There is a small pay and display car park approx 5 mins walk away, accesible via the driveway for the Francis Newton Pub, Clarkehouse Rd, Sheffield S10 2LA. There is an NCP car park at the Royal Hallamshire Hospital and a Q Park on Durham Road a few minutes walk away from SITraN. Parking spaces can be booked via http://www.q-park.co.uk/parking/sheffield/q-park-durham-road

What are the public transport options for getting to and from the event?
There are regular buses from near Sheffield train station (Flat Street) that stop very close to SITraN; the number 120 (First Buses) departs every 5 minutes through the day. The Blue Supertram service depart from the station, and the University of Sheffield stop is approx 10 mins walk from SITraN. A taxi from the station typically costs in the region of £5-7.

How can I contact the organiser with any questions?
Email: neuroscience@sheffield.ac.uk
Phone: 0114 222 2230

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Sheffield Institute for Translational Neuroscience

385a Glossop Road

Sheffield

S10 2HQ

United Kingdom

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