Nephrotic Syndrome Patient Information Day 2016
Event Information
Description
A day for patients (children and adults), families and friends on the kidney condition, Nephrotic Syndrome.
Free to attend.
- Learn about Nephrotic Syndrome and the latest research.
- Put your questions to the medical experts.
- Hear about the Nephrotic Syndrome Trust (NeST) charity's vision for the future.
- Share your experiences with others.
Refreshments and lunch included (please contact the organiser if you have any special dietary requests).
Programme
12.30 – 1.25: Arrive + Lunch
1.25 – 1.30: Welcome
1.30 – 1.45: Dr James Mccaffrey (Clinical Research Fellow at the University of Manchester) Introduction to Nephrotic Syndrome (Medical Perspective)
1.45 – 2.00: Dr Durga Kanigicherla (Manchester Royal Infirmary) Nephrotic Syndrome in Adults
2.00 -2.20: Emma Harding (Greater Manchester NeST Support Group) Nephrotic Syndrome from a Parent Perspective
2.20 -2.40: Nicholas Palmer (British Kidney Patient Association – BKPA) Advocacy and Patient Support
2.40 – 3.00: Wendy Cook (NeST Fundraising Coordinator) Nephrotic Syndrome Trust (NeST): Vision for the Future
3.00 – 3.45: Refreshment break and Networking
3.45 – 4.30 Prof. Nick Webb and Dr Rachel Lennon (Manchester Children’s Hospital), Prof. Moin Saleem (University of Bristol, Bristol Children’s Hospital) Clinical + Basic Science Research into Nephrotic Syndrome
4.30 – 5.00 Question and Answer Panel
Please note the slight change of venue - we will now be in the Nowgen Centre (still on the Central Manchester Hospital site) Directions can be found here:
https://www.cmft.nhs.uk/media/1372042/
directions%20to%20nowgen%202015%20new.pdf
Thanks for Kidney Research UK (KRUK) and the British Kidney Patient Association (BKPA) who have both provided funds to host this event.