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New Frontiers in M.E. -Transforming Patient Safety & Care

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Riddel Hall

185 Stranmillis Road

BELFAST

BT95EE

United Kingdom

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ME/CFS - leading edge research and its implications for medical professionals.

50 years ago, in 1969, the World Health Organisation classified Myalgic Encephalomyelitis/post viral fatigue syndrome as a neurological illness, not a psychological disorder. A perception has more recently existed that the illness is just 'chronic fatigue' or 'extreme tiredness.'


This educational conference is designed for all NHS healthcare providers, decision makers, university lecturers, researchers, medical and healthcare students, teaching staff, benefits agency representatives and service users, and is aimed to compliment the development of the new regional specialist Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) service.


Expert speakers will provide a unique opportunity to learn about the latest cutting edge scientific research trying to provide answers of why ME patients experience an abnormal response to exercise/activity, when compared to healthy controls (or patients with other fatiguing illnesses). The use of invasive CPET by Dr. Systrom is helping to unravel the exercise intolerance, and there is growing evidence that patients have a defective energy metabolism. Also being addressed is the difficult question of why patients still report being faced with disbelief and dismissal by some medical professionals.

We passionately believe that through science based medical education, medical professionals will gain a greater understanding of the illness and that this will benefit both them and their patients', who are among the 7000 men, women and children in Northern Ireland with the illness.

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Don't miss this unique opportunity to hear from these experts in the field about their latest research and how it informs our understanding of what the illness is, what helps and also importantly, what can potentially cause great harms to patients.

Admission to these lectures are FREE please drop in for any one or more of your choice.


Hope 4 ME & Fibro Northern Ireland, have been working with the Patient & Client Council, the Health & Social Care Board and the Public Health Agency since 2013 in a collaborative effort to provide specialist NHS services for this large patient population in N.I.




5.00pm - 5.45pm Registration & Buffet (Titles of presentations to follow)

5.45pm - 5.55pm Welcome from Robbie Butler MLA

5.55pm - 6.00pm Hope 4 ME & Fibro Northern Ireland (Hosting charity)

6.00pm - 6.45pm Brian Hughes

6.45pm - 7.30pm Caroline Kingdon

7.30pm - 7.45pm Comfort Break

7.45pm - 8.45pm David Systrom (Keynote Speaker)

8.45pm - 9.15pm Q & A Session

9.15pm Close




More on the expert speakers:

Dr. David M. Systrom is a physician at Brigham and Women’s Hospital and also an assistant professor of medicine at Harvard Medical School. He received his medical degree from Dartmouth Medical School (now known as Geisel School of Medicine). He is board certified in internal medicine and pulmonary disease and has authored over 130 peer-reviewed publications, has received funding from the National Institutes of Health and the American Heart Association, and has been named to the annual list of the Best Doctors in America. Dr. Systrom’s ME/CFS research work will further an understanding of the autonomic, peripheral neuropathy, and cardiovascular features of ME/CFS.


Caroline Kingdon trained as a State Registered nurse at Guy’s Hospital, later specialising in hospice care at St Christopher’s. and went on to work as a nurse practitioner for many years in a city GP practice. She moved to the US and helped to establish a population-based biobank and later worked as clinical director of the embryonic Qatar Biobank and has a Master’s in Public Health. Returning to the UK, Caroline joined the CureME team in 2013, and is responsible for the recruitment to the UK ME/CFS Biobank and coordinate applications for the use of the samples and data.


'Off the PACE and not NICE: Challenges facing evidence-based research into ME/CFS'

Brian Hughes is Professor of Psychology at the National University of Ireland, Galway. He is the author of Psychology in Crisis (2018, Palgrave), Rethinking Psychology: Good Science, Bad Science, Pseudoscience (2016, Palgrave), and Conceptual and Historical Issues in Psychology (2012, Prentice-Hall), as well as over 100 academic journal articles and chapters. He is a noted authority on psychophysiology and stress psychology, and served as President of the international Stress and Anxiety Research Society from 2014 to 2016. He also served as President of the Psychological Society of Ireland in 2004/2005, and in 2015 was admitted to Fellowship of the PSI. Brian is a prominent advocate for scientific psychology, evidence-based policy, scientific outreach, and the role of psychology in society.


Robbie Butler MLA has hosted the charity previous educational events in Stormont and has kindly agreed to act as Chairperson for this event also.


The term ME/CFS continues to be used while the current NICE Guideline is under review (expected publication date: October 2020).


Please note: If available, places will be released to patients on 1st August 2019, as numbers are strictly limited. Please click on ‘contact’ at the bottom of this page, or email hope4mefibro@outlook.com adding ‘Conference Booking‘ to the subject line, to be added to the waiting list.





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Date and Time

Location

Riddel Hall

185 Stranmillis Road

BELFAST

BT95EE

United Kingdom

View Map

Refund Policy

No Refunds

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