Actions and Detail Panel
NI RARE DISEASE PARTNERSHIP SUPPORT GROUP
Thu 19 November 2015, 19:00 – 21:00 GMT
Come and gain support and information for families with rare disease (children and adults!) Stronger Together!
This meeting will have a guest speaker, Margaret Richie MP, who will be happy to talk about rare disease provision, this will also be an opportunity for us to tell Ms Richie about our concerns, experiences and what we feel needs to be different.