San Francisco, California
London, United Kingdom
NIRDP: Come along to hear about the progress we have made and to plan our next steps.
Partners: Come along to hear what's happening on The Rare Disease Strategy and on other developments in health and social care.
When & Where
Northern Ireland Rare Disease Partnership [NIRDP]
We are a not for profit organisation, bringing together those living with a rare disease and organisations representing them: clinicians and other health professionals; researchers and producers of specialist medicines and equipment; health policy makers and academics. Our aim is to work constructively with stakeholders and service delivery organisations to find practical ways of improving the quality of life, treatment and care for those with rare diseases in Northern Ireland.