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The Long Gallery
Parliament Buildings
Stormont
BT4 3XX Belfast
United Kingdom
Organiser
Northern Ireland Rare Disease Partnership [NIRDP]
We are a not for profit organisation, bringing together those living with a rare disease and organisations representing them: clinicians and other health professionals; researchers and producers of specialist medicines and equipment; health policy makers and academics. Our aim is to work constructively with stakeholders and service delivery organisations to find practical ways of improving the quality of life, treatment and care for those with rare diseases in Northern Ireland.
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