San Francisco, California
London, United Kingdom
Welcome to registration for our Summer 2014 Partnership Meeting!
Come along to catch up with old friends; meet new ones; and hear about:
What's been happening;
Where we are with the Northern Ireland Rare Disease Plan;
Get prepared for taking part in the Disability Pride Carnival in Belfast on 20 September
When & Where
Northern Ireland Rare Disease Partnership [NIRDP]
We are a not for profit organisation, bringing together those living with a rare disease and organisations representing them: clinicians and other health professionals; researchers and producers of specialist medicines and equipment; health policy makers and academics. Our aim is to work constructively with stakeholders and service delivery organisations to find practical ways of improving the quality of life, treatment and care for those with rare diseases in Northern Ireland.