San Francisco, California
London, United Kingdom
Nothing about us without us
In Brief: We're holding a half-day symposium on the ethical and methodological isuses in researching with, and working co-productively with people whose disability/illness means they lack the capacity to "consent." We'd love to see you there!
Involvement in research is key to the representation of disabled people in society - and their lack of involvement, and consequent lack of ‘voice’ have been challenged extensively. Such challenge is situated in a wider context of commitment to collaboration and co-production, particularly by academic Research Councils. E.g. the Economic and Social Research Council (ESRC) states that “We are committed to knowledge exchange and encouraging collaboration between researchers and business, the public and civil society” and projects such as the N8 Research Partnership on co-production have informed the ESRC Impact Toolkit.
An area where such issues are acutely located is the involvement in research of people with disabilities/illnesses who lack the capacity to give informed consent. The legal, ethical and methodological dilemmas raised by this research, affecting academics across disciplines, as well as health and social care practitioners who engage in practice-based research, rarely feature in ethical and methodological training available to graduate students and practitioner-researchers.
This half-day symposium will feature presentations from reserchers engaged in these issues, followed by a roundtable (and some cake!). A full programme and more information will be distributed to those signed up to attend shortly.
Professor Dan Goodley (University of Sheffield)
Gilllian Loomes (University of York)
Elaine James (Bradford City Council)
Julie Latchem (Cardiff University)
We'd be delighted to see you there. Please book a ticket below so we know to expect you.
N.B. The venue is accessible, though if you have any access requirements or preferences you would like to raise prior to the event or discuss, please contact Gillian at email@example.com.
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Gillian Loomes is a Doctoral Researcher in the Department of Sociology, University of York.