San Francisco, California
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Welcome to the online booking page for the Nystagmus Network's 2013 Open Day in Bristol.
This year's key-note speaker is Lucy Hodges, a member of the world champion GB blind sailing team 2013. We will have a drama session for young people and our first ever acquired nystagmus discussion group. Exhibitors this year include Dolphin Computer, Edward Marcus, Independent Vision and Optelec, plus the Aniridia Network UK.
We hold Open Days so that we can learn about nystagmus and meet others affected by this eye condition. This is your chance to talk to people of all ages who have nystagmus, are parents of children with nystagmus or have a professional interest in nystagmus as teachers, orthoptists, optometrists, rehab workers, etc.
You can speak to medics, researchers and other professionals in an informal setting, including members of the nystagmus research teams in Cardiff, Leicester and Plymouth. NN scientific adviser Professor Chris Harris will give an overview of our recent international research workshop where 30 experts from around the world discussed the next steps for nystagmus.
You can join in discussion groups on nystagmus and education, employment and benefits -- as well as our very popular session for parents.
In all, we expect at least 150 people to join us in Bristol's City Centre Marriott hotel. Places are going fast, so book early to avoid disappointment. Here's what people said about last year's Open Day in Manchester:
"A fantastic day! Thank you so much. It was so informative and inspiring, we'll definitely be along next year! What a brilliant team!"
"We are so pleased we came today. We have learnt so much from the NN team and other parents. Thank you."
"My colleagues and I found it a really interesting day. It was well organised, the content was very varied, the discussion groups particularly interesting."
Young children are welcome, but must be accompanied by a parent or guardian at all times.
The ticket price includes a buffet lunch and tea, coffee, biscuits and water throughout the day. The venue is approximately half a mile from Bristol Temple Meads railway station. If you have any questions about our Open Day, please email firstname.lastname@example.org or phone 029 2045 4242.
When & Where
The Nystagmus Network is the oldest and best recognised charity supporting those affected by nystagmus in the UK. Nystagmus is a complex eye condition that is characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side or up and down and it affects around 1 in 500 people.
The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old, and has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network has been at the forefront in promoting a better understanding of nystagmus as well as leading the way in funding the research to find effective treatments. The charity offers its members the opportunity to get as much information about the condition as possible and through its support services, the Nystagmus Network ensures that after a diagnosis there is somewhere for a family to turn to.