San Francisco, California
London, United Kingdom
Nystagmus Network Open Day
Hilton Hotel, Reading
May 7, 2016,
Welcome to the online booking page for the Nystagmus Network's (NN) 2016 Open Day in Reading on Saturday, May 7. The NN annual Open Day brings together people who are affected by the condition, parents (and grandparents) of children with nystagmus and also eye health professionals. It's a day to learn, mix and ask questions where there is an emphasis on helping each other through peer group support sessions to create a positive experience for those who attend.
We are currently working on the final programme for the Open Day but we are delighted to announce that Kristina Venning has accepted an invitation for NN to be our Key Note Speaker! Kristina, who herself has nystagmus, will be talking about her career in the media and her own experiences of nystagmus.
In addition to Kristina, we will once again have a Q&A session with an expert panel of doctors and researchers about nystagmus. A key goal of our Open Day is for everyone to be able to talk freely with one another and our breakout sessions will cover the following topics:
Living with someone with nystagmus
Education and behaviour of children with nystagmus
The role of a QTVI in education
IT training session
Research developments in nystagmus
Navigating DLA and PIP
How to get there
If you're travelling by train to Reading main station, the Hilton Hotel is a short 3-mile taxi ride away. NN will have a volunteer at the station to direct you towards the taxi rank and to ensure that the driver knows where they are going. If you are driving the instructions below are from the M4 and there is an underground car park available at the hotel.
From the M4 Junction 11- (heading eastbound)
Exit the M4 at Junction 11 (A33) and take the first exit at the roundabout, Reading and A33. For the next three roundabouts, follow the A33 towards Reading. At the 4th roundabout, continue along the A33 towards Reading, you will then see the Hilton on the right hand side of the road after the Madejski Stadium. Turn right at the traffic lights and proceed into the slip road into Kennet Island. Then take the first right onto Drake way, followed by a right turn for the hotel entrance and car park.
From the M4 Junction 11- (heading westbound)
Follow the directions as above, but when leaving the M4 Junction 11 (A33) take the third exit at the roundabout, sign-posted Reading and A33. For the next three roundabouts, follow the A33 towards Reading. At the 4th roundabout, continue along the A33 towards Reading, you will then see the Hilton on the right hand side of the road after the Madejski Stadium. Turn right, at the traffic lights and proceed into the slip road into Kennet Island. Then take the first right onto Drake way, followed by a right turn for the hotel entrance and car park.
From Reading Town Center
Take the A33 to Basingstoke/M4 Junction 11 from the centre. The Hotel is on the left signposted Kennett Island just before the first Green Park roundabout. Take the slip road left onto Kennett Island and take the first right onto Drake way. Then turn right for the hotel entrance.
Tickets and creche
This is a ticket only event and includes lunch and refreshments throughout the day. The prices for this year are set at £30 for NN members and £50 for non-members. Children under the age of 8 go for free and for those between 8-16 the ticket costs £10. There will once again be a crèche made available for children under the age of 8 which will be on a first come first served basis – if you would like to secure this service please book a ticket as soon as possible.
Views from last year's Open Day
If you are still undecided about attending the NN Open Day in Reading have a read through some comments by some of our attendees last year.
Comment from an Orthoptist at the NN Open Day in 2015:
"Thank you so much for inviting me to the Nystagmus Network Open Day today! It was the most amazing experience!”
Comment from a mother of a young girl at the NN Open Day in 2015:
“The feeling of being surrounded by people, who understand the concerns that we have about our little girl's Nystagmus and the questions that we have about her future and how best we can help her, was so lovely…”
Comment from a Blind Children UK charity representative at the NN Open Day in 2015:
“I thought the event was excellent and very positive for parents and people living with Nystagmus. It’s nice to see people being able to share experiences and ask questions in a relaxed and supportive environment.”
If you have any questions you can contact us at firstname.lastname@example.org.
When & Where
The Nystagmus Network is the oldest and best recognised charity supporting those affected by nystagmus in the UK. Nystagmus is a complex eye condition that is characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side or up and down and it affects around 1 in 500 people.
The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old, and has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network has been at the forefront in promoting a better understanding of nystagmus as well as leading the way in funding the research to find effective treatments. The charity offers its members the opportunity to get as much information about the condition as possible and through its support services, the Nystagmus Network ensures that after a diagnosis there is somewhere for a family to turn to.