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PANDAS/PANS & Associated Disorders

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Holiday Inn London Regent's Park

Carburton Street

London

W1W 5EE

United Kingdom

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Refunds up to 7 days before event

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PANDAS/PANS & ASSOCIATED DISORDERS

Join us for an afternoon of discussions on how some infections can trigger PANDAS/PANS and other brain disorders and find out the most common symptoms and the most common infectious agents. Our experts will review the current testing methods and available treatments, as well as the present NIMH guidelines. They will present and analyse several case studies of patients, the advantages of using certain biomarkers, the reason these are selected and the information they provide for both the professionals and parents. The afternoon will include recently published scientific literature on these conditions and conclude with a speaker panel and Q&As.

This promises to be a fascinating and hugely informative afternoon, delivered by highly respected experts in the field.


**Please note that there is a training event for professionals in the morning. Please email info@aonm.org for more details**


What is PANS?



GUEST SPEAKERS

Dr Elena Frid

DR. ELENA FRID, MD

(Details to follow shortly)

BIOGRAPHY

Dr. Elena Frid is a Board Certified Neurologist and Clinical Neurophysiologist specializing in Infections Induced Autoimmune Disorders. With clinical interests in the Autoimmune Neurology, she sees patients (children and adults) with complex cases of Lyme disease and co-infections resulting in various neurological complaints.

Her many areas of expertise are: General Neurology, Headaches & Migraines, as well as sub-clinical focus in Autoimmune Neurology, Neuropsychiatric and Neurodegenerative Disorders. Using cutting edge diagnostic tools and clinical expertise she differentiates between idiopathic vs organic causes of various neurological disorders. Her knowledge has been sought by patients from all over the United States, as well as Canada and Europe.

Dr. Frid attended a coveted BA/MD program at Robert Wood Johnson Medical School (RWJMS) and went on to North Shore-LIJ Health Care Systems (currently Northwell) where she completed residency in Neurology and fellowship in Clinical Neurophysiology (EMG / EEG).

Dr. Frid is a member of the American Academy of Neurology (AAN). She is a voting member of the International Lyme and Associated Diseases Society (ILADS), Medical Adviser to Project Lyme - a non for profit organization, Vice President of Robert Wood Johnson Medical School Alumni Association, and a member of the Independent Physicians of New York (IDNY).

Upon request from families, Dr. Frid frequently collaborates on complex pediatric cases of Neuro Lyme with Dr. Charles Ray Jones, a world leading pediatric Lyme disease specialist with over 40 year career experience in dealing with children with Lyme disease and other Tick Borne Illnesses.



Dr. Charles Ray Jones

DR. CHARLES RAY JONES, MD (via Live video link)

(Details to follow shortly)

BIOGRAPHY

Dr. Charles Ray Jones is a pioneer Lyme physician who has treated more than 30,000 children with Lyme, from every state in the U.S., every province in Canada, and every continent.

A “quintessential humanist,” he entered Boston University’s Divinity School in 1954, drawn by the school’s commitment to activism and openness. There he befriended Dr. Martin Luther King, Jr., with whom he attended weekly meetings with Jewish students from Hillel and later marched in the cause of civil rights. Along this path, he decided that the best way he could serve humanity would be not as a minister, but as a medical doctor.

He was drafted into the army but, in 1962 received his medical degree from New York Medical College, where he was president of his class. He earned an Arthritis Foundation scholarship, prestigious awards from Merck and Hoffman LaRoche, and a coveted position researching collagen diseases. He served as chief resident at St. Luke’s Hospital in Manhattan, then went on to Memorial Sloan Kettering Cancer Center, His research there on Langerhans cell granulomatosis proved that the condition was not malignant, as had been believed. The treatment he developed for it forms the standard of care today.

In 1968, he opened a pediatric practice in Hamden, CT, and started seeing children with mysterious, atypical arthritis symptoms. Suspecting a vector-borne disease, he began treating them successfully with antibiotics before the cause of Lyme disease was established. He now practices in New Haven, CT.

Dr. Jones is an international treasure -a courageous, selfless, inspirational, and outstandingly gifted clinician who has helped thousands of the most severely ill children with Lyme disease from around the world to regain their health and their lives.” – Brian Fallon, Associate Professor of Clinical Psychiatry and Director of the Lyme Disease Research Center at Columbia University.

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Dr. Craig Shimasaki

PANDAS/PANS & Related Neuropsychiatric Disorders: Science Basics for Parents and Patients

DR. CRAIG SHIMASAKI, PhD, MBA
President & CEO Moleculera Labs, Inc.

Could an infection be causing your child’s symptoms?

PANS and PANDAS are infection-induced autoimmune conditions that disrupt a patient’s normal neurologic functioning, resulting in a sudden onset of Obsessive Compulsive Disorder (OCD) and/or motor tics. PANS and PANDAS can include a variety of other symptoms, such as anorexia (food restrictions), anxiety, irritability, hyperactivity, sleep disturbances, mood swings, depression, hyperactivity, difficulty concentrating, behavioural regression and urinary problems.


BIOGRAPHY

Dr. Craig Shimasaki is a scientist with over 33 years of clinical diagnostic and therapeutic R&D experience, starting his career at Genentech. During his tenure he has been involved in the research, development and clinical testing of neuropsychiatric drugs and diagnostics, genetic testing for predisposition to non-familial breast cancer, a gp-120 HIV vaccine, and influenza and RSV diagnostics and therapeutics. He co-founded Moleculera Labs with Dr. Madeleine Cunningham, an autoimmune neurobiology clinical laboratory based upon her 20+ years of research on infection-triggered autoimmune disorders.

His focus has been to translate basic research discoveries into acutely needed medical products for patients who need them. He has led five clinical diagnostic tests through FDA approval process and is a co-inventor on several medical and diagnostic patents. Dr. Shimasaki is an Adjunct Professor at the University of Oklahoma. He has authored and edited two books “The Business of Bioscience: What Goes Into Making a Biotechnology Product” and “Biotechnology Entrepreneurship: Starting, Managing and Leading Biotech Companies.” He received his BS in Biochemistry from University of California at Davis, his PhD in Molecular Biology from the University of Tulsa, and his MBA from Northwestern University, Kellogg School of Business.



  • Dr. Elena Frid

    Dr. Elena Frid



  • Dr. Charles Ray Jones

    Dr. Charles Ray Jones



  • Dr. Craig Shimasaki

    Dr. Craig Shimasaki




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Date and Time

Location

Holiday Inn London Regent's Park

Carburton Street

London

W1W 5EE

United Kingdom

View Map

Refund Policy

Refunds up to 7 days before event

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