Free

'Patient Voices' - Virtual International M.E Awareness Day Event

Actions and Detail Panel

Free

Event Information

Share this event

Date and time

Location

Location

Online event

Event description
Virtual International M.E Awareness Day Event!

About this event

'Patient Voices'

Over the past year, you may have heard M.E or M.E/C.F.S mentioned in the press in relation to Long Covid but not known what it is.

Myalgic Encephalomyelitis (otherwise known as Chronic Fatigue Syndrome) is not a new disease and yet not many people outside of the patient community know much about the illness.

M.E/C.F.S is not 'tiredness.

It is also not a rare disease, prior to COVID19 there were17-30 million patients worldwide (250,000+ in the UK).

COVID19 is anticipated to trigger M.E/C.F.S in some people. Some M.E/C.F.S scientists and researchers anticipate an additional 10 million new cases of M.E/C.F.S worldwide as a result of the pandemic. These patients will come from within the 'Long Covid' patient community.

May 12 is the international day of M.E (and other chronic illnesses), help us to mark the day by attending the online event!

Award-winning ME Foggy Dog was founded by and managed by an M.E/C.F.S patient - Sally Callow. 'Hosting' this event will be challenging as Sally has limited energy. Because of her energy restrictions the event will contain a mixture of content: Sally will deliver an awareness talk, share pre-recorded interviews with fellow M.E/C.F.S patients, advocates, and charity founders from around the world, screen short films about M.E/C.F.S issues, and hold a Q & A session with attendees in the later stages of the event.

This event is for both awareness and fundraising. All proceeds (minus platform fees) will be given to Cure ME (London School of Hygiene and Tropical Medicine) for biomedical research into the disease.

If you are unable to attend the event but would like to donate please do so below.

https://www.justgiving.com/fundraising/foggy-may-12

Thank you.

'See you' on May 12!

Share with friends

Date and time

Location

Online event

Save This Event

Event Saved