Rare Disease Day 2018 - Holyrood Reception

Rare Disease Day 2018 - Holyrood Reception

By Genetic Alliance UK

Date and time

Tue, 20 Feb 2018 18:00 - 20:00 GMT

Location

Scottish Parliament Building

Edinburgh EH99 1SP United Kingdom

Description

Join Rare Disease UK for our annual Rare Disease Day reception at the Scottish Parliament Building. The event will feature an update on progress being made to implement the Scottish Rare Disease Plan.

Speakers include:

  • Bob Doris MSP, Convener of the Cross Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions
  • Shona Robison MSP, Cabinet Secretary for Health and Sport
  • Professor Faisal Ahmed, Samson Gemmell Chair of Child Health
  • Dr Jayne Spink, Chair of Rare Disease UK
  • Arlene Smyth, Turner Syndrome Support Society

Organised by

Genetic Alliance UK works with organisations and individuals to ensure that the needs and preferences of all people affected by genetic, rare and undiagnosed conditions are recognised, understood and met.

Sales Ended