Rare Disease Day 2018 - Holyrood Reception
By Genetic Alliance UK
Date and time
Tue, 20 Feb 2018 18:00 - 20:00 GMT
Location
Scottish Parliament Building
Edinburgh EH99 1SP United KingdomDescription
Join Rare Disease UK for our annual Rare Disease Day reception at the Scottish Parliament Building. The event will feature an update on progress being made to implement the Scottish Rare Disease Plan.
Speakers include:
- Bob Doris MSP, Convener of the Cross Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions
- Shona Robison MSP, Cabinet Secretary for Health and Sport
- Professor Faisal Ahmed, Samson Gemmell Chair of Child Health
- Dr Jayne Spink, Chair of Rare Disease UK
- Arlene Smyth, Turner Syndrome Support Society
Organised by
Genetic Alliance UK works with organisations and individuals to ensure that the needs and preferences of all people affected by genetic, rare and undiagnosed conditions are recognised, understood and met.