Rare Disease Day 2019 - Holyrood Reception

Event Information

Share this event

Date and Time

Location

Location

Scottish Parliament

Edinburgh

EH8 8BS

United Kingdom

View Map

Event description

Description

Join Rare Disease UK for our annual Rare Disease Day reception at the Scottish Parliament Building.

Speakers include:

Bob Doris MSP, Chair, Cross Party Group on Rare, Genetic and Undiagnosed Conditions
Dr Jayne Spink, Chair, Rare Disease UK
Olalekan Oyedepo & Dr Susan Baird, patient and clinician experience of sickle cell in Scotland
Edel Clough and Susanne Shanks, patient and parent experience of primary ciliary dyskinesia
Nicholas McDonald, patient experience of long QT sydrome
Joe Fitzpatrick MSP - Minister for Public Health, Sport and Wellbeing


Please note that if you are unable to attend, you must cancel your ticket 48 hours before the event.

Date and Time

Location

Scottish Parliament

Edinburgh

EH8 8BS

United Kingdom

View Map

Save This Event

Event Saved