Rare Disease Day 2019 - Holyrood Reception

Join Rare Disease UK for our annual Rare Disease Day reception at the Scottish Parliament Building.

Speakers include:

– Bob Doris MSP, Chair, Cross Party Group on Rare, Genetic and Undiagnosed Conditions
– Dr Jayne Spink, Chair, Rare Disease UK
– Olalekan Oyedepo & Dr Susan Baird, patient and clinician experience of sickle cell in Scotland
– Edel Clough and Susanne Shanks, patient and parent experience of primary ciliary dyskinesia
– Nicholas McDonald, patient experience of long QT sydrome
– Joe Fitzpatrick MSP - Minister for Public Health, Sport and Wellbeing

Please note that if you are unable to attend, you must cancel your ticket 48 hours before the event.