Rare Disease Day 2019 - Reception at the Senedd

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Location

The Senedd

Cardiff Bay Link Road

Cardiff

CF10 4PZ

United Kingdom

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Join Rare Disease UK for our annual Rare Disease Day reception at the Senedd.

Speakers include:

Dr Jayne Spink, Chair of Rare Disease UK and Chief Executive of Genetic Alliance UK;

Dr Andrew Fry, Clinical Geneticist, All Wales Medical Genetics Service

Sally-Anne Ashdown and Fern Ashdown, patient and parent experience of chronic pancreatitis

Dr Graham Shortland, Medical Director for Cardiff and Vale UHB and Chair of the Rare Disease Implementation Group

Latifah Charles, parent of two girls affected by sickle cell

For more information, you can also contact the Genetic Alliance UK Policy & Engagement Manager (Wales), Emma Hughes - emma@geneticalliance.org.uk.

Please note that if you are unable to attend, you must cancel your ticket 48 hours before the event.

Date and Time

Location

The Senedd

Cardiff Bay Link Road

Cardiff

CF10 4PZ

United Kingdom

View Map

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