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Rare Disease Day 2020 - Reception at the Senedd

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Location

The Senedd

Cardiff Bay Link Road

Cardiff

CF10 4PZ

United Kingdom

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Event description
We are the national campaign for people with rare diseases and all who support them.

About this Event

Join Rare Disease UK for our annual Rare Disease Day reception at the Senedd.

Speakers include:

– Angela Burns AM, Chair of CPG for Rare, Genetic and Undiagnosed Conditions

– Dr Graham Shortland, Medical Director for Cardiff and Vale UHB and Chair of the Rare Disease Implementation Group

– Sioned Lewis, patient affected by a rare pituitary condition

– Dr Jayne Spink, Chair of Rare Disease UK and Chief Executive of Genetic Alliance UK

For more information, you can also contact Genetic Alliance UK's Policy & Engagement Manager (Wales), Emma Hughes - emma@geneticalliance.org.uk.

Please note that if you are unable to attend, you must cancel your ticket 48 hours before the event.

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Date and Time

Location

The Senedd

Cardiff Bay Link Road

Cardiff

CF10 4PZ

United Kingdom

View Map

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